Ignorance, information and autonomy

J Harris, K Keywood - Theoretical medicine and bioethics, 2001 - Springer
People have a powerful interest in geneticprivacy and its associated claim to ignorance, and
some equally powerful desires to beshielded from disturbing information are oftenvoiced …

To know or not to know? Genetic ignorance, autonomy and paternalism

J Wilson - Bioethics, 2005 - Wiley Online Library
This paper examines some arguments which deny the existence of an individual right to
remain ignorant about genetic information relating to oneself–often referred to as 'a right to …

The right to genetic ignorance confirmed

T Takala - Bioethics, 1999 - Wiley Online Library
One of the much debated issues around the evolving human genetics is the question of the
right to know versus the right not to know. The core question of this theme is whether an …

Genetic privacy: orthodoxy or oxymoron?

A Sommerville, V English - Journal of Medical Ethics, 1999 - jme.bmj.com
In this paper we question whether the concept of" genetic privacy" is a contradiction in terms.
And, if so, whether the implications of such a conclusion, inevitably impact on how society …

In defence of ignorance: genetic information and the right not to know

GT Laurie - European journal of health law, 1999 - JSTOR
This article considers two concepts which have for a long time received short shrift in the
field of medical law and ethics: ignorance and privacy. By'ignorance'is not meant wilful …

The right not to know: an autonomy based approach

R Andorno - Journal of medical ethics, 2004 - jme.bmj.com
The emerging international biomedical law tends to recognise the right not to know one's
genetic status. However, the basis and conditions for the exercise of this right remain …

Autonomy and a right not to know

J Husted, M Chadwick - The right to know and the right not to …, 2014 - books.google.com
Genetics and diseases of genetic origin inescapably involve families. Thus genetic
information obtained by testing one person may contain information of the same kind on one …

Genetic information, rights, and autonomy

M Häyry, T Takala - Theoretical Medicine and Bioethics, 2001 - Springer
Rights, autonomy, privacy, and confidentialityare concepts commonly used in
discussionsconcerning genetic information. When theseconcepts are thought of as denoting …

Genetic ignorance and reasonable paternalism

T Takala - Theoretical Medicine and Bioethics, 2001 - Springer
The question concerning an individual's rightto remain in ignorance regarding her
owngenetic makeup is central to debates aboutgenetic information. Whatever is decided …

[HTML][HTML] The relative importance of undesirable truths

L Bortolotti - Medicine, Health Care and Philosophy, 2013 - Springer
The right not to know is often defended on the basis of the principle of respect for personal
autonomy. If I choose not to acquire personal information that impacts on my future …