Frequency and format of clinical trial results dissemination to patients: a survey of authors of trials indexed in PubMed

S Schroter, A Price, M Malički, T Richards, M Clarke - Bmj Open, 2019 - bmjopen.bmj.com
Objective Dissemination of research findings is central to research integrity and promoting
discussion of new knowledge and its potential for translation into practice and policy. We …

Attitudes and views of the general public towards research participation

KEA Burns, N Magyarody, D Jiang… - Internal Medicine …, 2013 - Wiley Online Library
Background While the challenges of recruitment into clinical trials are well described, little is
known about the public's perceptions towards research. Aims We sought to describe the …

[HTML][HTML] Consultations about randomised controlled trials are shorter and less in-depth for socioeconomically disadvantaged patients compared to socioeconomically …

M Popa, B Young, N Rousseau, MG Cherry, I Jenkins… - Trials, 2024 - ncbi.nlm.nih.gov
Background Patients from socioeconomically disadvantaged backgrounds are underserved
in randomised controlled trials, yet they experience a much greater burden of disease …

Bureaucracy stifles medical research in Britain: a tale of three trials

H Snooks, H Hutchings, A Seagrove… - BMC medical research …, 2012 - Springer
Background Recent developments aiming to standardise and streamline processes of
gaining the necessary approvals to carry out research in the National Health Service (NHS) …

Patient and stakeholder engagement in designing pragmatic clinical trials

A Hung, C Baas, J Bekelman, M Fitz-Randolph… - Decision Making in a …, 2017 - Springer
The desire for patient-centeredness and more pragmatic clinical trials is increasing.
Pragmatic clinical trials are conducted in normal practices to answer whether interventions …

[PDF][PDF] How to incorporate patient and public perspectives into the

P Hoddinott, A Pollock, A O'Cathain, I Boyer, J Taylor… - 2018 - academia.edu
International government guidance recommends patient and public involvement (PPI) to
improve the relevance and quality of research. PPI is defined as research being carried out …

The natural history of conducting and reporting clinical trials: interviews with trialists

RMD Smyth, A Jacoby, DG Altman, C Gamble… - Trials, 2015 - Springer
Background To investigate the nature of the research process as a whole, factors that might
influence the way in which research is carried out, and how researchers ultimately report …

Testing approaches to sharing trial results with participants: The Show RESPECT cluster randomised, factorial, mixed methods trial

A South, N Joharatnam-Hogan, C Purvis… - PLoS …, 2021 - journals.plos.org
Background Sharing trial results with participants is an ethical imperative but often does not
happen. We tested an Enhanced Webpage versus a Basic Webpage, Mailed Printed …

Global health trials methodological research agenda: results from a priority setting exercise

A Rosala-Hallas, A Bhangu, J Blazeby, L Bowman… - Trials, 2018 - Springer
Background Methodological research into the design, conduct, analysis and reporting of
trials is essential to optimise the process. UK specialists in the field have established a set of …

Decision aids for randomised controlled trials: a qualitative exploration of stakeholders' views

K Gillies, ZC Skea, MK Campbell - BMJ open, 2014 - bmjopen.bmj.com
Objectives To explore stakeholders' perceptions of decision aids designed to support the
informed consent decision-making process for randomised controlled trials. Design …