Patients' Rights or Family Responsibilities-Two Approaches to Genetic Testing

L Skene - Med. L. Rev., 1998 - HeinOnline
This paper explores two contrasting approaches to policy making on genetic testing and the
control and use of human tissue and genetic information, especially in the intra-familial …

Managing familial risk in genetic testing

S Taub, K Morin, MA Spillman, RM Sade… - Genetic …, 2004 - liebertpub.com
Increasing numbers of people are seeking genetic testing and uncovering information that
directly concerns their biological relatives as well as themselves. This familial quality of …

To warn or not to warn? Genetic information, families, and physician liability

JL Gold - McGill Journal of Medicine, 2004 - mjm.mcgill.ca
Genetic testing raises a number of legal issues. Physicians providing genetic testing may be
faced with questions related to privacy, confidentiality, and the duty to warn. Because …

Challenging medical-legal norms: the role of autonomy, confidentiality, and privacy in protecting individual and familial group rights in genetic information

GT Laurie - Journal of Legal Medicine, 2001 - Taylor & Francis
Much ink has been spilled discussing the ramifi cations of genetic advances for individuals,
communities, and society at large. A central concern has been the problem of regulating …

What should the law say about disclosure of genetic information to relatives

EW Clayton - J. Health Care L. & Pol'y, 1998 - HeinOnline
When a person is diagnosed with a genetic disease or characteristic, his or her relatives are
more likely than others in the general population to be similarly affected. This fact raises a …

Genetic data and medical confidentiality

WF Flanagan - Health LJ, 1995 - HeinOnline
The development of new genetic tests has posed a number of ethical and legal concerns,
including the laws and practices governing the confidentiality of genetic data. A complex …

Panel Comment: The Attempt to Pass the Genetic Privacy Act in Maryland

NA Holtzman - Journal of Law, Medicine & Ethics, 1995 - cambridge.org
The Genetic Privacy Act (GPA) is a comprehensive effort to protect individuals from
unauthorized analysis of their DNA and from unauthorized disclosure of information …

Confidentiality in genetic testing: legal and ethical issues in an international context

BM Knoppers - Med. & L., 1993 - HeinOnline
This comparative legal study on confidentiality in genetic testing examines three levels of
communication of genetic Information: the personal; the familial; and the institutional third …

[HTML][HTML] Should physicians warn patients' relatives of genetic risks?

M Lacroix, G Nycum, B Godard, BM Knoppers - CMAJ, 2008 - Can Med Assoc
• Protecting confidentiality and preventing harm to family members may create a dilemma for
physicians.• Requiring patients to agree to disclosure before genetic testing can lead to …

[HTML][HTML] Genetic diseases and the duty to disclose

S Callier, R Simpson - AMA Journal of Ethics, 2012 - journalofethics.ama-assn.org
Amy, a long-term patient of yours, has been diagnosed with a bipolar disorder that has a
hereditary component likely to manifest itself in some of her relatives. While efforts to identify …