Misfitting the research process: Shaping qualitative research “in the field” to fit people living with dementia

J Webb, V Williams, M Gall… - International Journal of …, 2020 - journals.sagepub.com
It is increasingly recognized that people living with dementia should be included in
qualitative research that foregrounds their voices, but traditional research approaches can …

More than talking: A scoping review of innovative approaches to qualitative research involving people with dementia

L Phillipson, A Hammond - International Journal of …, 2018 - journals.sagepub.com
Participation in qualitative research frequently relies upon recall and verbal expression,
which may be difficult for some people with dementia. While the use of arts-based and visual …

Embracing complexity within creative approaches to dementia research: Ethics, reflexivity, and research practices

S Campbell, R Dowlen… - International Journal of …, 2023 - journals.sagepub.com
In this paper, we present reflections from three research studies that have engaged with
creative approaches to qualitative research with people living with dementia. Creative …

Barriers to qualitative dementia research: The elephant in the room

J Carmody, V Traynor… - Qualitative health …, 2015 - journals.sagepub.com
As our population is aging, the global prevalence of dementia is rising. Recent extensive
reviews of the dementia literature highlight a clear need for additional qualitative research to …

Including people with dementia in research

H Wilkinson - The perspectives of people with dementia …, 2002 - books.google.com
As probably one of the most excluded groups in society, people with dementia experience
the double jeopardy (Rodeheaver and Datan 1988) of being older people with a cognitive …

Reflections and recommendations for conducting in-depth interviews with people with dementia

EK Cridland, L Phillipson… - Qualitative Health …, 2016 - journals.sagepub.com
Despite the importance and advantages of including people with dementia in research,
there are various challenges for researchers and participants to their involvement. This …

Nothing about us without us: research methods enabling participation for aged care residents who have dementia

K Shannon, J Montayre… - International Journal of …, 2021 - journals.sagepub.com
The voices of people living with dementia are rarely included in primary data collection due
to cognitive challenges and the concerns of researchers and others about limitations …

Researching dementia: are there unique methodological challenges for health services research?

J Bond, L Corner - Ageing & Society, 2001 - cambridge.org
Health services research has been dominated by the biomedical paradigm and positivism,
and the funding cultures of biomedicine have dictated the choice of method used by …

Challenges in conducting qualitative research with individuals with dementia

L Beuscher, VT Grando - Research in Gerontological nursing, 2009 - journals.healio.com
Qualitative research can capture the meaningful experiences and life values of individuals
with dementia not reported in quantitative studies. This article shares a personal experience …

A seat around the table: participatory data analysis with people living with dementia

CL Clarke, H Wilkinson, J Watson… - Qualitative Health …, 2018 - journals.sagepub.com
The involvement of “people with experience” in research has developed considerably in the
last decade. However, involvement as co-analysts at the point of data analysis and synthesis …