A hospital-wide initiative to support medically complex adolescents and young adults transition experience: The process of a systems approach to transition in a …

M Forcier, S Ahlm, R Boudos… - … from pediatric to …, 2012 - scholars.northwestern.edu
Children with complex medical conditions who previously did not survive into puberty and
their adult years now face the unique challenge and interactions of chronic disease …

Views of young people with chronic conditions on transition from pediatric to adult health services

J Hislop, H Mason, JR Parr, L Vale, A Colver - Journal of Adolescent Health, 2016 - Elsevier
Purpose This study sought to identify and describe the views of young people with chronic
conditions about the transition from pediatric to adult services. Methods Q methodology was …

The age of uncertainty: Parent perspectives on the transitions of young people with mental health difficulties to adulthood

P Jivanjee, JM Kruzich, LJ Gordon - Journal of Child and Family Studies, 2009 - Springer
Abstract For young people aged 16–24, the transition from adolescence to young adulthood
involves predictable and unpredictable changes and they may encounter challenges in their …

Stakeholder validation of a model of readiness for transition to adult care

LA Schwartz, LD Brumley, LK Tuchman… - JAMA …, 2013 - jamanetwork.com
Importance That too few youth with special health care needs make the transition to adult-
oriented health care successfully may be due, in part, to lack of readiness to transfer care …

Standardizing Medical Complexity: Fruitful, Formidable, or Futile?

DM Gerber, RJ Coller - Pediatrics, 2024 - publications.aap.org
Increasing recognition of the health, economic, and social adversity endured by children
with medical complexity (CMC) and their families commands substantial clinical, research …

Intervention research to improve care and outcomes for children with medical complexity and their families

JA Feinstein, JG Berry, C Feudtner - Current problems in pediatric and …, 2021 - Elsevier
Healthcare and outcomes for children with medical complexity (CMC) and their families can
be improved by conducting well-conceived, designed, implemented, and analyzed research …

Developing a hospital-wide transition program for young adults with medical complexity

D Szalda, C Steinway, A Greenberg, S Quinn… - Journal of Adolescent …, 2019 - Elsevier
Abstract Purpose Transitional age adults (18–24 years) are the fastest growing cohort of
patients in children's hospitals across the nation. The purpose of the study was to …

A Theory for Understanding Parental Workload and Capacity to Care for Children With Medical Complexity.

PR Lawrence, R Spratling - Research & Theory for Nursing …, 2022 - search.ebscohost.com
Abstract Background and Purpose: Children with medical complexity (CMC) experience
poor health outcomes despite the high cost of care, and their parents face challenges in …

After the visit: An overview of government and community programs supporting children with medical complexity

KB Olson - Children, 2017 - mdpi.com
The optimal care of children with medical complexity (CMC) requires involvement from a
network of professionals that includes physicians, nurses, ancillary service providers, and …

Transition needs of parents of adolescents and emerging adults with special health care needs and disabilities

CL Betz, WM Nehring, ML Lobo - Journal of Family Nursing, 2015 - journals.sagepub.com
The period of health care transition (HCT) for adolescents and emerging adults with special
health care needs and disabilities involves a complex realignment of the parent–child …