As the management of haemophilia is complex, it is essential that those with the disorder
should have ready access to a range of services provided by a multidisciplinary team of …

Comprehensive haemophilia care has been defined as the continuing supervision of all
medical and psychosocial factors affecting the person with haemophilia family. Services …

The history of the development of a network of haemophilia centres in the UK has been
described in detail elsewhere [1]. The UK Ministry of Health designated 36 “haemophilia …

This paper reports the findings of a global survey of practice patterns for the management of
patients with haemophilia A. A total of 147 haemophilia treatment centres worldwide …

Since the introduction of replacement therapy in the early 1960s by the infusion of plasma-
derived factor VIII and IX preparations, important changes have occurred for hemophilia …

Haemophilia A and B are inherited bleeding disorders whose diagnosis and management is
generally well established and best provided by specialists in a comprehensive care setting …

ABSTRACT The World Federation of Haemophilia (WFH) estimates that worldwide,
approximately 70% of patients with hemophilia are underdiagnosed and untreated. Most live …

The aim of this study was to determine the clinical conditions of patients with haemophilia
within Europe as recommended by the European Commission. In this multicentre, cross …

Background For the documentation and comparison of outcomes of clinical care in
hemophilia, especially with different treatment protocols, as well as in clinical trials of new …

A questionnaire was circulated in 2012 to national haemophilia patient organizations in
Europe affiliated to the European Haemophilia Consortium (EHC) and the World Federation …