[PDF][PDF] Informal caregivers literature review

A Goodhead, J McDonald - A report prepared for the National Health …, 2007 - Citeseer
In this report the term caregiver refers to informal caregiving unless otherwise specified.
Informal caregivers are those:… caring for a friend, family member or neighbour who …

[HTML][HTML] An organizing framework for informal caregiver interventions: detailing caregiving activities and caregiver and care recipient outcomes to optimize evaluation …

CH Van Houtven, CI Voils, M Weinberger - BMC geriatrics, 2011 - Springer
Background Caregiver interventions may help improve the quality of informal care. Yet the
lack of a systematic framework specifying the targets and outcomes of caregiver …

Informal carers' support needs when caring for a person with dementia–A scoping literature review

T Holt Clemmensen, H Hein Lauridsen… - … Journal of Caring …, 2021 - Wiley Online Library
Background Informal carers of people with dementia report having unmet needs for support
and few supportive interventions have been shown to be effective. There is a need to …

[HTML][HTML] Implementing and evaluating the first German young-carers project: Intentions, pitfalls and the need for piloting complex interventions

J große Schlarmann, S Metzing-Blau… - The Open Nursing …, 2011 - ncbi.nlm.nih.gov
The aim of the study was to develop, implement and evaluate a concept for the first support
program for young carers and their families in Germany. This paper intends to critically …

Tracking involvement over time: a longitudinal study of experiences among refugee parents involved as public contributors in health research

E Lampa, A Sarkadi, F Osman, U Kihlbom… - International Journal of …, 2022 - Taylor & Francis
Purpose Patient and public involvement (PPI) is becoming more common in research, but
has been problematized for lack of diversity. While PPI literature increasingly focuses on …

Coping with caring: Profiles of caregiving by informal carers living with a loved one who has dementia

H Kraijo, W Brouwer, R de Leeuw, G Schrijvers… - …, 2012 - journals.sagepub.com
Background and aim: While the number of people suffering from dementia in the
Netherlands will double in the next 25 years, there are no plans to expand the capacity of …

[HTML][HTML] Accessing health services through the back door: a qualitative interview study investigating reasons why people participate in health research in Canada

A Townsend, SM Cox - BMC medical ethics, 2013 - Springer
Background Although there is extensive information about why people participate in clinical
trials, studies are largely based on quantitative evidence and typically focus on single …

[HTML][HTML] Consumer and community involvement in health and medical research: evaluation by online survey of Australian training workshops for researchers

A McKenzie, K Alpers, J Heyworth, C Phuong… - Research Involvement …, 2016 - Springer
Plain English Summary In Australia, since 2009, the Consumer and Community Involvement
Program (formerly the Consumer and Community Participation Program) has developed and …

Informal care in Europe: findings from the European Social Survey (2014) special module on the social determinants of health

E Verbakel, S Tamlagsrønning… - … European Journal of …, 2017 - academic.oup.com
Background: Against the background of a rising demand for informal care in European
societies, this study sets out to provide descriptive information by gender on (i) prevalence …

[HTML][HTML] It's Like Juggling, Constantly Trying to Keep All Balls in the Air”: A Qualitative Study of the Support Needs of Working Caregivers Taking Care of Older Adults

EE Vos, SR De Bruin, AJ van der Beek… - International journal of …, 2021 - mdpi.com
Many informal caregivers of older adults combine their caregiving tasks with a paid job.
Adequate support is important to enable them to combine paid work with caregiving, while …