Coming to understand the child has autism: A process illustrating parents' evolving readiness for engaging in care

SJ Gentles, DB Nicholas, SM Jack, KA McKibbon… - …, 2020 - journals.sagepub.com
We report results from a large qualitative study regarding the process of parents coming to
understand the child has autism starting from the time of initial developmental concerns …

Parents' voices:“Our process of advocating for our child with autism.” A meta‐synthesis of parents' perspectives

K Boshoff, D Gibbs, RL Phillips… - Child: Care, Health …, 2018 - Wiley Online Library
Background Advocacy has been described by parents of children with autism as an
important coping strategy, enabling them to move forward by redirecting emotions into …

Parent engagement in autism-related care: A qualitative grounded theory study

SJ Gentles, DB Nicholas, SM Jack… - Health Psychology …, 2019 - Taylor & Francis
Parents of children with autism assume substantial responsibility for navigating intervention
to address autism-related concerns, including involvement in therapy. Little is known, from …

Parents' experiences of an early autism diagnosis: Insights into their needs

AS Rabba, C Dissanayake, J Barbaro - Research in Autism Spectrum …, 2019 - Elsevier
Background Little research has directly examined parental needs following their child's early
diagnosis of autism. Method The experiences and support needs of 13 mothers and fathers …

A meta‐synthesis of how parents of children with autism describe their experience of advocating for their children during the process of diagnosis

K Boshoff, D Gibbs, RL Phillips… - Health & Social Care …, 2019 - Wiley Online Library
The diagnostic process for children with autism can be complex for parents to navigate as
they advocate for their child in order to obtain answers to their concerns, and receive the …

Challenges and contributors to self-efficacy for caregivers of toddlers with autism

HH Schertz, JN Lester, E Erden, S Safran… - Autism, 2020 - journals.sagepub.com
In this qualitative study, 11 mothers of toddlers with autism participated in interviews to
investigate how they perceived their roles and their competency to support toddlers' social …

[HTML][HTML] A phenomenological study of the lived experiences of parents of young children with autism receiving special education services

DM Barrow - 2017 - search.proquest.com
Over the past two decades reported rates of autism have steadily risen. The current
incidence is 1 in 68 children. While autism can be reliably diagnosed at 18 months in most …

A meta‐synthesis of how parents of children with autism describe their experience of accessing and using routine healthcare services for their children

K Boshoff, H Bowen‐Salter, D Gibbs… - Health & Social Care …, 2021 - Wiley Online Library
In order to present a greater understanding to parental experiences of supporting their child
with autism to access healthcare services, a systematic review of qualitative research was …

Parents' views and experiences of talking about autism with their children

L Crane, L Jones, R Prosser, M Taghrizi… - Autism, 2019 - journals.sagepub.com
The way an autism diagnosis is disclosed to parents has been found to play a crucial role in
their acceptance of, and the way they cope with, their child's diagnosis. Yet, research into …

What it takes to raise children with autism in a rural state

RL Singh, EJ Moody, B Rigles, EB Smith - Advances in …, 2019 - Springer
Parents of children with autism living in a rural state face unique challenges based on their
location. These include barriers to diagnosis and treatment, driven in part by scarcity of …