A qualitative descriptive analysis of nurses' perceptions of hospice care for deceased children following organ donation in hospice cool rooms

MJ Tatterton, R Summers… - International Journal of …, 2019 - magonlinelibrary.com
Background: Following organ donation, bodies of children are generally cared for in hospital
mortuaries or by funeral directors, and their families are offered little routine bereavement …

A narrative inquiry into care of the dying in an acute-care setting from the point of view of family

MM O'Reilly - 2002 - ir.wgtn.ac.nz
A consequence of the biomedical model of cure which has dominated the delivery of health
care over the last half-century has been the perception of death as failure, leading to …

When patients ask to die: the role of nurses in medical assistance in dying

L Sheridan - 2017 - search.proquest.com
Canadians older than 64 years now outnumber persons under 14 years and are
increasingly living with chronic illness heightening the importance of palliative and end of …

Inside American End-of-Life Doula Trainings through Analytic Autoethnography: A Social Movement for Death Positivity Manifests in a New Profession

ADV Incorvaia - Journal of Contemporary Ethnography, 2023 - journals.sagepub.com
End-of-life doulas (EOLDs) represent a rising profession and are becoming increasingly well-
known through pop culture, yet associated scholarship is scant. Through a “sociology of …

'I no longer feel alone': meeting the needs of bereaved grandparents through a children's hospice support group

MJ Tatterton, JA Lyon - International Journal of Palliative …, 2022 - magonlinelibrary.com
Background: Children's hospices provide a range of family-centred care services, including
bereavement support. Not all hospices provide specific services for grandparents. Aim: To …

Impact of medical assistance in dying (MAiD) on family caregivers

R Goldberg, R Nissim, E An, S Hales - BMJ supportive & palliative …, 2021 - spcare.bmj.com
Medical assistance in dying (MAiD) is a globally polarising topic which often sparks debate
surrounding the ethical and moral dilemmas that arise with a life-ending intervention. To …

[PDF][PDF] The important thing is...: Patient and Family Voice in Palliative Care

DL Van Aalst - 2013 - ir.canterbury.ac.nz
Dame Cicely Saunders created the hospice movement to be a voice for the voiceless. Those
needing palliative care needed someone to speak for them and ensure they received the …

Dying to Know: A Community Survey about Dying and End-of-Life Care

SL Schrader, ML Nelson… - OMEGA-Journal of …, 2010 - journals.sagepub.com
A community survey of Sioux Falls, South Dakota was conducted in 2004 to understand
knowledge, attitudes, and preferences about end-of-life (EOL) care and to generate …

[HTML][HTML] How to talk about dying? The development of an evidence-based model for communication with patients in their last days of life and their family caregivers

SJ Felber, SC Zambrano, T Guffi, FM Schmitz, BG Brem… - PEC Innovation, 2024 - Elsevier
Objective To help healthcare professionals (HCP) act with more confidence when
communicating about approaching death, we sought to develop a communication model for …

'O le toe Fa'amoemoe o le Aiga'A Family's Last Hope: Understandings of Palliative Care & Hospice Care Services among Samoan Women Family Caregivers

E Fanueli - 2016 - researchspace.auckland.ac.nz
Literature indicates that populations worldwide are ageing and non-communicable diseases
(NCDs) are more likely to affect older people 60 years and over. Older people are also more …