1046 Improving parental communication in the late diagnosis of Congenital Heart Defect
O Shekoni, P Nair - 2022 - adc.bmj.com
Aims Although majority of significant CHDs (congenital heart defects) are diagnosed
antenatally, we still find occasional significant CHDs diagnosed postnatally. These present …
antenatally, we still find occasional significant CHDs diagnosed postnatally. These present …
Acceptability of a parental early warning tool for parents of infants with complex congenital heart disease: a qualitative feasibility study
Aim To explore the acceptability and feasibility of a parental early warning tool, called the
Congenital Heart Assessment Tool (CHAT), for parents going home with their infant between …
Congenital Heart Assessment Tool (CHAT), for parents going home with their infant between …
How not to tell parents about their child's new diagnosis of congenital heart disease: an internet survey of 841 parents
D Hilton-Kamm, M Sklansky, RK Chang - Pediatric cardiology, 2014 - Springer
An online survey for parents of children with congenital heart disease (CHD) was developed
to study the perceptions and experiences of parents when receiving the diagnosis. The …
to study the perceptions and experiences of parents when receiving the diagnosis. The …
Parents' experiences of receiving their child's diagnosis of congenital heart disease: A systematic review and meta‐synthesis of the qualitative literature
S Dandy, A Wittkowski… - British Journal of Health …, 2024 - Wiley Online Library
Purpose This systematic review aimed to synthesize qualitative research on parents'
psychological experiences following their child's diagnosis of congenital heart disease …
psychological experiences following their child's diagnosis of congenital heart disease …
Mapping parents' journey following prenatal diagnosis of CHD: a qualitative study
KW Harris, CM Hammack-Aviran… - Cardiology in the …, 2023 - cambridge.org
Objective: To better understand parents' accounts of their prenatal and postnatal experience
after prenatal diagnosis of CHD–particularly emotional processing and coping mechanisms …
after prenatal diagnosis of CHD–particularly emotional processing and coping mechanisms …
Red flags: a case series of clinician–family communication challenges in the context of CHD
P Sekar, KL Marcus, EP Williams… - Cardiology in the Young, 2017 - cambridge.org
We describe three cases of newborns with complex CHD characterised by communication
challenges. These communication challenges were categorised as patient, family, or system …
challenges. These communication challenges were categorised as patient, family, or system …
[HTML][HTML] Information following a diagnosis of congenital heart defect: experiences among parents to prenatally diagnosed children
T Carlsson, G Bergman, U Melander Marttala… - PLoS …, 2015 - journals.plos.org
Background Prenatal screening of pregnant women in Sweden has improved the detection
of major congenital heart defects (CHD). The aim was to explore parental experiences and …
of major congenital heart defects (CHD). The aim was to explore parental experiences and …
Parents of children with congenital heart disease prefer more information than cardiologists provide
B Arya, JS Glickstein, SM Levasseur… - Congenital heart …, 2013 - Wiley Online Library
Objectives To determine whether pediatric cardiologists and parents of older children with
congenital heart disease (CHD) share similar expectations regarding the education and …
congenital heart disease (CHD) share similar expectations regarding the education and …
Signs of deterioration in infants discharged home following congenital heart surgery in the first year of life: a qualitative study
J Tregay, KL Brown, S Crowe, C Bull… - Archives of disease in …, 2016 - adc.bmj.com
Aims To describe the ways in which parents recognise and make decisions about their
child's symptoms following discharge home after congenital heart interventions in the first …
child's symptoms following discharge home after congenital heart interventions in the first …
[PDF][PDF] Knowledge, attitude and practice of parents' of children with congenital heart disease in a developing country
O Elshazali, T Farah, M Zaki - Journal of Pediatrics and Neonatal …, 2020 - researchgate.net
Background: Congenital heart disease (CHD) is the most common type of birth defects and
remain the leading cause of death from congenital malformations. The knowledge of the …
remain the leading cause of death from congenital malformations. The knowledge of the …