Navigating the “liberation procedure”: a qualitative study of motivating and hesitating factors among people with multiple sclerosis
M Ploughman, C Harris, SH Hogan… - Patient preference …, 2014 - Taylor & Francis
Background The debate within the multiple sclerosis (MS) community initiated by the chronic
cerebrospinal venous insufficiency (CCSVI) hypothesis and the subsequent liberation …
cerebrospinal venous insufficiency (CCSVI) hypothesis and the subsequent liberation …
The liberation procedure decision-making experience for people with multiple sclerosis
CL Murray, M Ploughman, C Harris… - Global qualitative …, 2014 - journals.sagepub.com
Despite the absence of scientific evidence demonstrating the efficacy of the “liberation
procedure” in treating multiple sclerosis (MS), thousands of MS patients worldwide have …
procedure” in treating multiple sclerosis (MS), thousands of MS patients worldwide have …
Medical tourism for CCSVI procedures in people with multiple sclerosis: an observational study
Background: Many Canadians with multiple sclerosis (MS) have recently travelled
internationally to have procedures for a putative condition called chronic cerebrospinal …
internationally to have procedures for a putative condition called chronic cerebrospinal …
Caught in a no-win situation: discussions about CCSVI between persons with multiple sclerosis and their neurologists–a qualitative study
SM Driedger, R Maier, RA Marrie, M Brouwers - BMC neurology, 2017 - Springer
Background In recent years, shared decision making (SDM) has been promoted as a model
to guide interactions between persons with MS and their neurologists to reach mutually …
to guide interactions between persons with MS and their neurologists to reach mutually …
Predictors of chronic cerebrospinal venous insufficiency procedure use among older people with multiple sclerosis: a national case–control study
M Ploughman, OJ Manning, S Beaulieu… - BMC Health Services …, 2015 - Springer
Background Following the initial reports of Chronic Cerebrospinal Venous Insufficiency
(CCSVI) and the purported curative potential of venoplasty,(coined the 'liberation'procedure) …
(CCSVI) and the purported curative potential of venoplasty,(coined the 'liberation'procedure) …
“I knew what was going to happen if I did nothing and so I was going to do something”: Faith, hope, and trust in the decisions of Canadians with multiple sclerosis to …
Background Chronic cerebrospinal venous insufficiency (CCSVI) treatment is an unproven
intervention aimed at relieving some of the symptoms of multiple sclerosis (MS). Despite …
intervention aimed at relieving some of the symptoms of multiple sclerosis (MS). Despite …
Media, politics and science policy: MS and evidence from the CCSVI trenches
D Pullman, A Zarzeczny, A Picard - BMC medical ethics, 2013 - Springer
Abstract Background In 2009, Dr. Paolo Zamboni proposed chronic cerebrospinal venous
insufficiency (CCSVI) as a possible cause of multiple sclerosis (MS). Although his theory and …
insufficiency (CCSVI) as a possible cause of multiple sclerosis (MS). Although his theory and …
Why can't I get my veins unblocked in Canada?
M Barkhouse - cmaj, 2010 - Can Med Assoc
I have multiple sclerosis, but I also have blocked veins. Why can't I get my veins unblocked
in Canada, just because I have pre-existing multiple sclerosis? I agree, treatment for any …
in Canada, just because I have pre-existing multiple sclerosis? I agree, treatment for any …
“Waiting for Science to Catch up with Practice”: an examination of 10-year YouTube trends in discussions of chronic cerebral spinal venous insufficiency treatment for …
Objective: The objective of this longitudinal study examined, first, whether people with
multiple sclerosis who previously advocated for angioplasty to treat chronic cerebral spinal …
multiple sclerosis who previously advocated for angioplasty to treat chronic cerebral spinal …
Social media representation of chronic cerebrospinal venous insufficiency intervention for multiple sclerosis
S Ghahari, SJ Forwell - International Journal of MS Care, 2016 - meridian.allenpress.com
Background: We conducted a rigorous review of videos related to multiple sclerosis (MS)
and chronic cerebrospinal venous insufficiency (CCSVI) treatment posted by people with MS …
and chronic cerebrospinal venous insufficiency (CCSVI) treatment posted by people with MS …