Objective Living with Systemic Lupus Erythematosus (SLE) is a complex, chronic
endeavour, involving patients, social support networks and healthcare systems. In Portugal …

Objective According to studies, Patient support groups (PSG) have shown effectiveness in
improving patients quality of life, hence the recommendation to include them in patient …

Despite advances in understanding and managing systemic lupus erythematosus (SLE),
patients continue to face significant challenges in receiving optimal care and support. The …

Objective To study the association between economic status and the lived experience of
systemic lupus erythematosus (SLE) patients. Methods Data on the economic status of …

Objective The objective of this study was to assess the impact of systemic lupus
erythematosus (SLE) on patients and carers. Methods Adults with SLE and carers of SLE …

LTL was launched on 5/7/2017 through social media (Facebook [FB], Instagram, Twitter and
YouTube) to provide reliable information about lupus and facilitate engagement of Spanish …

Objective The aim of this study was to analyse the 2020 burden of Systemic Lupus
Erythematosus (SLE) in Europe, from the patients' perspective. Methods In May 2020, Lupus …

Methods An extensive network of Latin American stakeholders participated in the program
design, implementation, dissemination, and evaluation. Patients and rheumatologists …

Objective Recognizing and addressing health disparities in systemic lupus erythematosus
(SLE) is important given it disproportionately affects women and racial/ethnic minorities. This …

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