The collection and use of human genetic data raise important ethical questions about how to
balance individual autonomy and privacy with the potential for public good. The proliferation …

The ethical landscape in the field of genomics is rapidly shifting. Plummeting sequencing
costs, along with ongoing advances in bioinformatics, now make it possible to generate an …

Our ability to generate genomic data is currently well ahead of our ability to understand what
they mean, raising challenges about how best to engage with them. This article considers …

The emerging need for family-centric initiatives for obtaining consent in personal genome
research | Genome Medicine Skip to main content SpringerLink Account Menu Find a journal …

The importance of genomic data sharing has long been recognized across a range of
contexts, from community resource projects to biomedical research seeking insights into …

Genomic science and associated technologies are facilitating an unprecedented rate of
discovery of novel insights into the relationship between human genetic variation and …

Herein, we describe the characterization of a Digital Consent (DC) System to support current
ethical-legal issues associated with challenges posed by informed consent for genomic …

This paper argues that it will be important for new genomic technologies to recognize the
limits of traditional approaches to informed consent, so that other-regarding implications of …

Genetic database initiatives have given rise to considerable debate about their potential
harms and benefits. The question arises as to whether existing ethical frameworks are …

New advances in genomics changed the research landscape significantly in the last few
years. The power and significance of already existing tissue collections is enhanced by their …