Invasion of privacy is decried on the streets and discussed in academic halls. The
preservation of privacy is almost a holy cause in the United States and, indeed, it is …

Over the past few years, I have often been approached by researchers who tell me that they
wonder if they are doing the right thing by looking for this or that disease gene. They are …

One of the major challenges posed by the advances in genetic testing is how best to
regulate the acquisition and control of private genetic information. The fact that reports are …

The Human Genome Project has raised many issues regarding the contributions of genetics
to a variety of diseases and societal conditions. With genetic testing now easily conducted …

The science of genetics holds great promise. Ideally, the more scientists learn about the
human genome and the functions of specific genes, the better they will understand what …

Genetic privacy and confidentiality have both intrinsic and consequential value. Although
general agreement exists about the need to protect privacy and confidentiality in the …

I shall focus my essay on privacy and its implications for medical records and genetic
research data. Individuals care about and guard their privacy intensely in many areas. With …

This review covers the ethical, legal, and policy issues associated with the generation and
dissemination of genetic information. First, conceptual issues, such as the definition of terms …

Philip R. Reilly ince its publication early in 1995, the Genetic Privacy Act (GPA) and
Commentary has had significant influ-S ence on discussions about regulating access to and …

Is information about a person's genome, whether derived from the analysis of DNA or
otherwise, protected by the right to privacy? If it is, why and in what manner? It often appears …