[HTML][HTML] Genomic testing for human health and disease across the life cycle: applications and ethical, legal, and social challenges
GA Bilkey, BL Burns, EP Coles, FL Bowman… - Frontiers in Public …, 2019 - frontiersin.org
The expanding use of genomic technologies encompasses all phases of life, from the
embryo to the elderly, and even the posthumous phase. In this paper, we present the …
embryo to the elderly, and even the posthumous phase. In this paper, we present the …
Translating personalized medicine using new genetic technologies in clinical practice: the ethical issues
The integration of new genetic technologies into clinical practice holds great promise for the
personalization of medical care, particularly the use of large-scale DNA sequencing for …
personalization of medical care, particularly the use of large-scale DNA sequencing for …
The ethical introduction of genome-based information and technologies into public health
With the human genome project running from 1989 until its completion in 2003, and the
incredible advances in sequencing technology and in bioinformatics during the last decade …
incredible advances in sequencing technology and in bioinformatics during the last decade …
[HTML][HTML] Tailoring the process of informed consent in genetic and genomic research
CN Rotimi, PA Marshall - Genome Medicine, 2010 - Springer
Genomic science and associated technologies are facilitating an unprecedented rate of
discovery of novel insights into the relationship between human genetic variation and …
discovery of novel insights into the relationship between human genetic variation and …
The ethics of consent in a shifting genomic ecosystem
SSJ Lee - Annual review of biomedical data science, 2021 - annualreviews.org
The collection and use of human genetic data raise important ethical questions about how to
balance individual autonomy and privacy with the potential for public good. The proliferation …
balance individual autonomy and privacy with the potential for public good. The proliferation …
[HTML][HTML] Biobanking and public health: is a human rights approach the tie that binds?
EM Meslin, I Garba - Human genetics, 2011 - Springer
Ethical principles guiding public health and genomic medicine are often at odds: whereas
public health practice adopts collectivist principles that emphasize population-based …
public health practice adopts collectivist principles that emphasize population-based …
Clinical and personal utility of genomic high-throughput technologies: perspectives of medical professionals and affected persons
A Urban, M Schweda - New genetics and society, 2018 - Taylor & Francis
In the evaluation of genomic high-throughput technologies, the idea of “utility” plays an
important role. The “clinical utility” of genomic data refers to the improvement of healthcare …
important role. The “clinical utility” of genomic data refers to the improvement of healthcare …
[HTML][HTML] The emerging need for family-centric initiatives for obtaining consent in personal genome research
J Minari, H Teare, C Mitchell, J Kaye, K Kato - Genome medicine, 2014 - Springer
The emerging need for family-centric initiatives for obtaining consent in personal genome
research | Genome Medicine Skip to main content SpringerLink Account Menu Find a journal …
research | Genome Medicine Skip to main content SpringerLink Account Menu Find a journal …
Genomic medicine: a decade of successes, challenges, and opportunities
JJ McCarthy, HL McLeod, GS Ginsburg - Science translational …, 2013 - science.org
Genomic medicine—an aspirational term 10 years ago—is gaining momentum across the
entire clinical continuum from risk assessment in healthy individuals to genome-guided …
entire clinical continuum from risk assessment in healthy individuals to genome-guided …
[HTML][HTML] Challenges for precision public health communication in the era of genomic medicine
Although still in the early stages of development, the advent of fast, high-output, and cost-
effective next-generation DNA sequencing technology is moving precision medicine into …
effective next-generation DNA sequencing technology is moving precision medicine into …