Finding a way with words: Delphi study to develop a discussion prompt list for paediatric palliative care

S Ekberg, A Herbert, K Johns, G Tarrant… - Palliative …, 2020 - journals.sagepub.com
Background: Effective communication is a cornerstone of quality paediatric palliative care.
Families report struggling, however, to know what to discuss, with whom, and when …

Components and principles of a pediatric palliative care consultation: results of a Delphi study

N Bradford, A Herbert, C Mott, N Armfield… - Journal of Palliative …, 2014 - liebertpub.com
Background: Pediatric palliative care is a distinct specialty that requires input from pediatric
and palliative medicine specialists to provide comprehensive high-quality care …

Non-specialist palliative care-question prompt list preparation: patient, family and clinician experiences

MJ Verhoef, E de Nijs, B Sweep… - BMJ Supportive & …, 2024 - spcare.bmj.com
Objectives Question prompt lists (QPLs) support patients and family to ask questions they
consider important during conversations with clinicians. We aimed to evaluate how a QPL …

A Research Agenda for the Question Prompt List in Outpatient Palliative Care.

M McDarby, E Mroz, BD Carpenter… - Journal of Palliative …, 2021 - search.ebscohost.com
In the article, the authors present their study on the feasibility of using the question prompt
list (QPL) as a person-centered intervention to address patient and caregiver preparation for …

Uncertainty, responsibility, and reassurance in paediatric palliative care: A conversation analytic study of telephone conversations between parents and clinicians

HM Sansone, S Ekberg, S Danby - Qualitative Health …, 2022 - eprints.qut.edu.au
Background: Families play a vital role in the day-to-day medical care of children with life-
limiting conditions. Navigating their child's symptoms, treatments, and the possibility of …

Innovative communication approaches for initializing pediatric palliative care: perspectives of family caregivers and treating specialists

L Hrdlickova, K Polakova, M Loucka - BMC Palliative Care, 2023 - Springer
Background Effective cooperation between a pediatric palliative care team (PPCT), primary
treating specialists, patients and families is crucial for high quality care of children with …

Discussing death: making end of life implicit or explicit in paediatric palliative care consultations

S Ekberg, S Danby, J Rendle-Short, A Herbert… - Patient education and …, 2019 - Elsevier
Objective To consider whether and how family members and clinicians discuss end of life
during paediatric palliative care consultations. Methods Nine naturally occurring paediatric …

Go Wish-Pediatrics: Pilot Study of a Conversation Tool in Pediatric Palliative Care

MR Potthoff - 2015 - openprairie.sdstate.edu
Problem: Difficult conversations and decisions are an unfortunate reality for parents caring
for children facing life threatening conditions. Confusing, inadequate, and inconsistent …

Using EmPalPed—An Educational Toolkit on Essential Messages in Palliative Care and Pain Management in Children—As a Strategy to Promote Pediatric Palliative …

X García-Quintero, A Claros-Hulbert, ME Tello-Cajiao… - Children, 2022 - mdpi.com
Background: Most children needing palliative care (PC) live in low-and middle-income
countries. In Colombia, pediatric palliative care (PPC) knowledge among healthcare …

Research priorities in pediatric palliative care: a Delphi study

R Steele, H Bosma, MF Johnston… - … of palliative care, 2008 - journals.sagepub.com
Background Pediatric palliative care is increasingly recognized to be a specialized type of
care requiring specific skills and knowledge, yet, as found in several countries, there is little …