Finding a way with words: Delphi study to develop a discussion prompt list for paediatric palliative care
Background: Effective communication is a cornerstone of quality paediatric palliative care.
Families report struggling, however, to know what to discuss, with whom, and when …
Families report struggling, however, to know what to discuss, with whom, and when …
Components and principles of a pediatric palliative care consultation: results of a Delphi study
Background: Pediatric palliative care is a distinct specialty that requires input from pediatric
and palliative medicine specialists to provide comprehensive high-quality care …
and palliative medicine specialists to provide comprehensive high-quality care …
Non-specialist palliative care-question prompt list preparation: patient, family and clinician experiences
MJ Verhoef, E de Nijs, B Sweep… - BMJ Supportive & …, 2024 - spcare.bmj.com
Objectives Question prompt lists (QPLs) support patients and family to ask questions they
consider important during conversations with clinicians. We aimed to evaluate how a QPL …
consider important during conversations with clinicians. We aimed to evaluate how a QPL …
A Research Agenda for the Question Prompt List in Outpatient Palliative Care.
In the article, the authors present their study on the feasibility of using the question prompt
list (QPL) as a person-centered intervention to address patient and caregiver preparation for …
list (QPL) as a person-centered intervention to address patient and caregiver preparation for …
Uncertainty, responsibility, and reassurance in paediatric palliative care: A conversation analytic study of telephone conversations between parents and clinicians
Background: Families play a vital role in the day-to-day medical care of children with life-
limiting conditions. Navigating their child's symptoms, treatments, and the possibility of …
limiting conditions. Navigating their child's symptoms, treatments, and the possibility of …
Innovative communication approaches for initializing pediatric palliative care: perspectives of family caregivers and treating specialists
L Hrdlickova, K Polakova, M Loucka - BMC Palliative Care, 2023 - Springer
Background Effective cooperation between a pediatric palliative care team (PPCT), primary
treating specialists, patients and families is crucial for high quality care of children with …
treating specialists, patients and families is crucial for high quality care of children with …
Discussing death: making end of life implicit or explicit in paediatric palliative care consultations
Objective To consider whether and how family members and clinicians discuss end of life
during paediatric palliative care consultations. Methods Nine naturally occurring paediatric …
during paediatric palliative care consultations. Methods Nine naturally occurring paediatric …
Go Wish-Pediatrics: Pilot Study of a Conversation Tool in Pediatric Palliative Care
MR Potthoff - 2015 - openprairie.sdstate.edu
Problem: Difficult conversations and decisions are an unfortunate reality for parents caring
for children facing life threatening conditions. Confusing, inadequate, and inconsistent …
for children facing life threatening conditions. Confusing, inadequate, and inconsistent …
Using EmPalPed—An Educational Toolkit on Essential Messages in Palliative Care and Pain Management in Children—As a Strategy to Promote Pediatric Palliative …
X García-Quintero, A Claros-Hulbert, ME Tello-Cajiao… - Children, 2022 - mdpi.com
Background: Most children needing palliative care (PC) live in low-and middle-income
countries. In Colombia, pediatric palliative care (PPC) knowledge among healthcare …
countries. In Colombia, pediatric palliative care (PPC) knowledge among healthcare …
Research priorities in pediatric palliative care: a Delphi study
R Steele, H Bosma, MF Johnston… - … of palliative care, 2008 - journals.sagepub.com
Background Pediatric palliative care is increasingly recognized to be a specialized type of
care requiring specific skills and knowledge, yet, as found in several countries, there is little …
care requiring specific skills and knowledge, yet, as found in several countries, there is little …