Analyzing differences between patient and proxy on patient reported outcomes in multiple sclerosis

JM Sonder, R Holman, DL Knol, LVAE Bosma… - Journal of the …, 2013 - Elsevier
Background Proxy respondents, partners of multiple sclerosis (MS) patients, can provide
valuable information on the MS patients' disease. In an earlier publication we found …

Overcoming recruitment challenges in patients with multiple sclerosis: Results from an Italian survey

S Maida, G Dalla Costa, M Rodegher… - Clinical …, 2014 - journals.sagepub.com
Background: Recruiting patients for randomized clinical trials is still extremely difficult. While
there has been much research in oncology patients, no previous studies have consistently …

Development and validation of the communication and language assessment questionnaire for persons with multiple sclerosis (CLAMS)

S El-Wahsh, H Bogaardt, F Kumfor, K Ballard - Multiple Sclerosis and …, 2020 - Elsevier
Background There is growing recognition that communication and language can be
compromised in persons with multiple sclerosis (MS). However, patient-reported outcome …

[HTML][HTML] Evaluation of ChatGPT's responses to information needs and information seeking of dementia patients

HR Saeidnia, M Kozak, BD Lund, M Hassanzadeh - Scientific Reports, 2024 - nature.com
Many people in the advanced stages of dementia require full-time caregivers, most of whom
are family members who provide informal (non-specialized) care. It is important to provide …

[HTML][HTML] Use of an online community to develop patient-reported outcome instruments: the Multiple Sclerosis Treatment Adherence Questionnaire (MS-TAQ)

P Wicks, M Massagli, A Kulkarni, H Dastani - Journal of medical Internet …, 2011 - jmir.org
Background: Patients with multiple sclerosis (MS) may face barriers, such as treatment
fatigue, memory problems, or side effects, that may influence their adherence to medication …

Disclosing the diagnosis of multiple sclerosis: the Profile Project

V Martinelli, A Ghezzi, E Montanari, M Radaelli… - Journal of …, 2012 - Springer
Communicating the diagnosis of multiple sclerosis (MS) is a challenging task, often
undertaken with discomfort by most neurologists. Only a few studies have investigated …

Development and usability testing of your MS questionnaire: A patient-based digital tool to monitor symptoms of multiple sclerosis

G Giovannoni, E Alvarez, E Tutton… - Digital …, 2023 - journals.sagepub.com
Objectives We describe the development of Your Multiple Sclerosis Questionnaire and
present the real-world usability testing results of Your Multiple Sclerosis Questionnaire …

Evaluation of ChatGPT-generated medical responses: a systematic review and meta-analysis

Q Wei, Z Yao, Y Cui, B Wei, Z Jin, X Xu - Journal of Biomedical Informatics, 2024 - Elsevier
Abstract Objective Large language models (LLMs) such as ChatGPT are increasingly
explored in medical domains. However, the absence of standard guidelines for performance …

The MS Choices Survey: findings of a study assessing physician and patient perspectives on living with and managing multiple sclerosis

A Riñon, M Buch, D Holley, E Verdun - Patient preference and …, 2011 - Taylor & Francis
Background Treatment of multiple sclerosis (MS) with disease-modifying drugs (DMDs) can
reduce relapse frequency and delay disability progression. Although adherence to DMDs is …

[HTML][HTML] neuroGPT-X: toward a clinic-ready large language model

E Guo, M Gupta, S Sinha, K Rössler, M Tatagiba… - Journal of …, 2023 - thejns.org
OBJECTIVE The objective was to assess the performance of a context-enriched large
language model (LLM) compared with international neurosurgical experts on questions …