Analyzing differences between patient and proxy on patient reported outcomes in multiple sclerosis
JM Sonder, R Holman, DL Knol, LVAE Bosma… - Journal of the …, 2013 - Elsevier
Background Proxy respondents, partners of multiple sclerosis (MS) patients, can provide
valuable information on the MS patients' disease. In an earlier publication we found …
valuable information on the MS patients' disease. In an earlier publication we found …
Overcoming recruitment challenges in patients with multiple sclerosis: Results from an Italian survey
S Maida, G Dalla Costa, M Rodegher… - Clinical …, 2014 - journals.sagepub.com
Background: Recruiting patients for randomized clinical trials is still extremely difficult. While
there has been much research in oncology patients, no previous studies have consistently …
there has been much research in oncology patients, no previous studies have consistently …
Development and validation of the communication and language assessment questionnaire for persons with multiple sclerosis (CLAMS)
Background There is growing recognition that communication and language can be
compromised in persons with multiple sclerosis (MS). However, patient-reported outcome …
compromised in persons with multiple sclerosis (MS). However, patient-reported outcome …
[HTML][HTML] Evaluation of ChatGPT's responses to information needs and information seeking of dementia patients
Many people in the advanced stages of dementia require full-time caregivers, most of whom
are family members who provide informal (non-specialized) care. It is important to provide …
are family members who provide informal (non-specialized) care. It is important to provide …
[HTML][HTML] Use of an online community to develop patient-reported outcome instruments: the Multiple Sclerosis Treatment Adherence Questionnaire (MS-TAQ)
P Wicks, M Massagli, A Kulkarni, H Dastani - Journal of medical Internet …, 2011 - jmir.org
Background: Patients with multiple sclerosis (MS) may face barriers, such as treatment
fatigue, memory problems, or side effects, that may influence their adherence to medication …
fatigue, memory problems, or side effects, that may influence their adherence to medication …
Disclosing the diagnosis of multiple sclerosis: the Profile Project
V Martinelli, A Ghezzi, E Montanari, M Radaelli… - Journal of …, 2012 - Springer
Communicating the diagnosis of multiple sclerosis (MS) is a challenging task, often
undertaken with discomfort by most neurologists. Only a few studies have investigated …
undertaken with discomfort by most neurologists. Only a few studies have investigated …
Development and usability testing of your MS questionnaire: A patient-based digital tool to monitor symptoms of multiple sclerosis
G Giovannoni, E Alvarez, E Tutton… - Digital …, 2023 - journals.sagepub.com
Objectives We describe the development of Your Multiple Sclerosis Questionnaire and
present the real-world usability testing results of Your Multiple Sclerosis Questionnaire …
present the real-world usability testing results of Your Multiple Sclerosis Questionnaire …
Evaluation of ChatGPT-generated medical responses: a systematic review and meta-analysis
Abstract Objective Large language models (LLMs) such as ChatGPT are increasingly
explored in medical domains. However, the absence of standard guidelines for performance …
explored in medical domains. However, the absence of standard guidelines for performance …
The MS Choices Survey: findings of a study assessing physician and patient perspectives on living with and managing multiple sclerosis
A Riñon, M Buch, D Holley, E Verdun - Patient preference and …, 2011 - Taylor & Francis
Background Treatment of multiple sclerosis (MS) with disease-modifying drugs (DMDs) can
reduce relapse frequency and delay disability progression. Although adherence to DMDs is …
reduce relapse frequency and delay disability progression. Although adherence to DMDs is …
[HTML][HTML] neuroGPT-X: toward a clinic-ready large language model
OBJECTIVE The objective was to assess the performance of a context-enriched large
language model (LLM) compared with international neurosurgical experts on questions …
language model (LLM) compared with international neurosurgical experts on questions …