Clinic to in-home telemedicine reduces barriers to care for patients with MS or other neuroimmunologic conditions
R Bove, P Garcha, CJ Bevan… - Neurology …, 2018 - AAN Enterprises
Objective To describe the routine use of telemedicine-enabled neurologic care in an
academic outpatient MS and neuroimmunology clinic and quantify its role in reducing …
academic outpatient MS and neuroimmunology clinic and quantify its role in reducing …
Patient perspectives on patient-reported outcomes in multiple sclerosis treatment trajectories: A qualitative study of why, what, and how?
K Westergaard, L Skovgaard, M Magyari… - Multiple Sclerosis and …, 2022 - Elsevier
Background: Interest in patient-reported outcomes has been growing in multiple sclerosis
research and clinical care in recent years. This situation reflects the need for developing …
research and clinical care in recent years. This situation reflects the need for developing …
[HTML][HTML] Association between patient experience with patient-reported outcome measurements and overall satisfaction with care in neurology
Background There has been increasing focus on both patient-reported outcome
measurement (PROM) collection and patient satisfaction ratings; nevertheless, little is known …
measurement (PROM) collection and patient satisfaction ratings; nevertheless, little is known …
Effect of organizational features on patient satisfaction with care in Italian multiple sclerosis centres
K Mattarozzi, E Baldin, C Zenesini… - European Journal of …, 2017 - Wiley Online Library
Background and purpose Receiving clear, complete and up‐to‐date information and having
a satisfying relationship with the health professional (HP) are of primary importance for MS …
a satisfying relationship with the health professional (HP) are of primary importance for MS …
[HTML][HTML] Conversational artificial intelligence for spinal pain questionnaire: validation and user satisfaction
KH Nam, DH Kim, JH Lee, JI Lee, MJ Kim, JY Park… - Neurospine, 2022 - ncbi.nlm.nih.gov
Objective The purpose of our study is to develop a spoken dialogue system (SDS) for pain
questionnaire in patients with spinal disease. We evaluate user satisfaction and validated …
questionnaire in patients with spinal disease. We evaluate user satisfaction and validated …
Do people with multiple sclerosis want to discuss their long-term prognosis? A nationwide study in Argentina
EC Contentti, PA López, JP Pettinicchi, R Alonso… - Multiple Sclerosis and …, 2020 - Elsevier
Background Demographics, clinical and imaging prognostic factors have been reported in
large series of people with multiple sclerosis (PwMS). However, personalized long-term …
large series of people with multiple sclerosis (PwMS). However, personalized long-term …
Clinical decision-making in multiple sclerosis: challenges reported internationally with emerging treatment complexity
P Ng, S Murray, SM Hayes - Multiple Sclerosis and Related Disorders, 2015 - Elsevier
Introduction The introduction of several new disease-modifying therapies (DMTs) to the field
of Multiple Sclerosis (MS) treatment requires that MS healthcare providers have a …
of Multiple Sclerosis (MS) treatment requires that MS healthcare providers have a …
Impact of multiple sclerosis project ECHO (Extension for Community Healthcare Outcomes) on provider confidence and clinical practice
KN Alschuler, GA Stobbe, DP Hertz… - … Journal of MS …, 2019 - meridian.allenpress.com
Abstract Background: Project ECHO (Extension for Community Healthcare Outcomes)
represents a novel approach to addressing disparities in multiple sclerosis (MS) care. A …
represents a novel approach to addressing disparities in multiple sclerosis (MS) care. A …
[HTML][HTML] Satisfaction of telehealth in patients with established neuromuscular disorders
Introduction/aims: Determine established neuromuscular disease patients' satisfaction with
telehealth during the COVID-19 pandemic. Methods: We received 50 completed Utah …
telehealth during the COVID-19 pandemic. Methods: We received 50 completed Utah …
Social support in cyberspace: a content analysis of communication within a Huntington's disease online support group
NS Coulson, H Buchanan, A Aubeeluck - Patient education and counseling, 2007 - Elsevier
OBJECTIVE: Huntington's disease (HD) is an inherited disorder, characterized by a
progressive degeneration of the brain. Due to the nature of the symptoms, the genetic …
progressive degeneration of the brain. Due to the nature of the symptoms, the genetic …