Development and validation of a measure of the impact of epilepsy on a young person's quality of life: Glasgow epilepsy outcome scale for young persons (GEOS-YP)

KH Townshend, L Dorris, MJ McEwan, SE Aylett… - Epilepsy & behavior, 2008 - Elsevier
OBJECTIVE: The goal of the work described here was to develop and validate a measure of
the impact of epilepsy on an adolescent's quality of life that is based on direct exploration of …

Evaluation of the responsiveness of the Impact of Pediatric Epilepsy Scale

GM Breau, CS Camfield, PR Camfield, LM Breau - Epilepsy & Behavior, 2008 - Elsevier
The Impact of Pediatric Epilepsy Scale (IPES) is an epilepsy-specific, health-related quality
of life (HRQOL) questionnaire that is brief, accurate, and valid and assesses the influence of …

The impact of childhood epilepsy on quality of life: A qualitative investigation using focus group methods to obtain children's perspectives on living with epilepsy

C Moffat, L Dorris, L Connor, CA Espie - Epilepsy & Behavior, 2009 - Elsevier
As children's perceptions of their quality of life are unique, it is essential to elicit their
concerns directly rather than from proxy informants. This study therefore aimed to investigate …

Parent‐and patient‐validated content for pediatric epilepsy quality‐of‐life assessment

G Arunkumar, E Wyllie, P Kotagal, HT Ong… - Epilepsia, 2000 - Wiley Online Library
Purpose: The purpose of this study was to assess the parent‐and patient‐validated content
of quality‐of‐life measurement for use in children with epilepsy. Methods: We asked the …

A review of subjective impact measures for use with children and adolescents with epilepsy

J Cowan, GA Baker - Quality of Life Research, 2004 - Springer
Purpose: To evaluate measures of epilepsy-specific impact currently available for use with
children and adolescents. The relative merits of the different measures are examined …

Development of the quality of life in epilepsy inventory for adolescents: the QOLIE‐AD‐48

JA Cramer, LE Westbrook, O Devinsky, K Perrine… - …, 1999 - Wiley Online Library
Purpose: We report the development of an instrument to assess health‐related quality of life
(HRQOL) in adolescents with epilepsy. Methods: A sample of 197 English‐speaking …

Validation of the Quality of Life in Childhood Epilepsy Questionnaire (QOLCE-55 and QOLCE-16) for use by parents of young adults with childhood-onset epilepsy

K Puka, SW Goodwin, MA Ferro, ML Smith, E Widjaja… - Epilepsy & Behavior, 2020 - Elsevier
Objective The objective of the study was to validate the parent-proxy reported Quality of Life
in Childhood Epilepsy Questionnaire (QOLCE) in a sample of young adults with a history of …

Global assessment of the severity of epilepsy (GASE) Scale in children: Validity, reliability, responsiveness

CJ Chan, G Zou, S Wiebe, KN Speechley - Epilepsia, 2015 - Wiley Online Library
Summary Objective The Global Assessment of Severity of Epilepsy (GASE) Scale is a single‐
item, 7‐point global rating scale designed for neurologist‐report of overall severity of …

Validation of the quality of life in childhood epilepsy questionnaire in American epilepsy patients

M Sabaz, JA Lawson, DR Cairns, MS Duchowny… - Epilepsy & Behavior, 2003 - Elsevier
The aim of this study was to adapt the Australian Quality of Life in Childhood Epilepsy
Questionnaire (QOLCE) and determine its psychometric properties in a North American …

[HTML][HTML] Quality of life and psychosocial development in adolescents with epilepsy: a qualitative investigation using focus group methods

MJ McEwan, CA Espie, J Metcalfe, MJ Brodie… - Seizure, 2004 - Elsevier
The majority of previous studies investigating the impact of epilepsy on the QOL of
adolescents have used proxy opinions from clinicians and/or parents. This study highlights …