Development and validation of a measure of the impact of epilepsy on a young person's quality of life: Glasgow epilepsy outcome scale for young persons (GEOS-YP)
KH Townshend, L Dorris, MJ McEwan, SE Aylett… - Epilepsy & behavior, 2008 - Elsevier
OBJECTIVE: The goal of the work described here was to develop and validate a measure of
the impact of epilepsy on an adolescent's quality of life that is based on direct exploration of …
the impact of epilepsy on an adolescent's quality of life that is based on direct exploration of …
Evaluation of the responsiveness of the Impact of Pediatric Epilepsy Scale
GM Breau, CS Camfield, PR Camfield, LM Breau - Epilepsy & Behavior, 2008 - Elsevier
The Impact of Pediatric Epilepsy Scale (IPES) is an epilepsy-specific, health-related quality
of life (HRQOL) questionnaire that is brief, accurate, and valid and assesses the influence of …
of life (HRQOL) questionnaire that is brief, accurate, and valid and assesses the influence of …
The impact of childhood epilepsy on quality of life: A qualitative investigation using focus group methods to obtain children's perspectives on living with epilepsy
As children's perceptions of their quality of life are unique, it is essential to elicit their
concerns directly rather than from proxy informants. This study therefore aimed to investigate …
concerns directly rather than from proxy informants. This study therefore aimed to investigate …
Parent‐and patient‐validated content for pediatric epilepsy quality‐of‐life assessment
Purpose: The purpose of this study was to assess the parent‐and patient‐validated content
of quality‐of‐life measurement for use in children with epilepsy. Methods: We asked the …
of quality‐of‐life measurement for use in children with epilepsy. Methods: We asked the …
A review of subjective impact measures for use with children and adolescents with epilepsy
J Cowan, GA Baker - Quality of Life Research, 2004 - Springer
Purpose: To evaluate measures of epilepsy-specific impact currently available for use with
children and adolescents. The relative merits of the different measures are examined …
children and adolescents. The relative merits of the different measures are examined …
Development of the quality of life in epilepsy inventory for adolescents: the QOLIE‐AD‐48
JA Cramer, LE Westbrook, O Devinsky, K Perrine… - …, 1999 - Wiley Online Library
Purpose: We report the development of an instrument to assess health‐related quality of life
(HRQOL) in adolescents with epilepsy. Methods: A sample of 197 English‐speaking …
(HRQOL) in adolescents with epilepsy. Methods: A sample of 197 English‐speaking …
Validation of the Quality of Life in Childhood Epilepsy Questionnaire (QOLCE-55 and QOLCE-16) for use by parents of young adults with childhood-onset epilepsy
Objective The objective of the study was to validate the parent-proxy reported Quality of Life
in Childhood Epilepsy Questionnaire (QOLCE) in a sample of young adults with a history of …
in Childhood Epilepsy Questionnaire (QOLCE) in a sample of young adults with a history of …
Global assessment of the severity of epilepsy (GASE) Scale in children: Validity, reliability, responsiveness
Summary Objective The Global Assessment of Severity of Epilepsy (GASE) Scale is a single‐
item, 7‐point global rating scale designed for neurologist‐report of overall severity of …
item, 7‐point global rating scale designed for neurologist‐report of overall severity of …
Validation of the quality of life in childhood epilepsy questionnaire in American epilepsy patients
M Sabaz, JA Lawson, DR Cairns, MS Duchowny… - Epilepsy & Behavior, 2003 - Elsevier
The aim of this study was to adapt the Australian Quality of Life in Childhood Epilepsy
Questionnaire (QOLCE) and determine its psychometric properties in a North American …
Questionnaire (QOLCE) and determine its psychometric properties in a North American …
[HTML][HTML] Quality of life and psychosocial development in adolescents with epilepsy: a qualitative investigation using focus group methods
MJ McEwan, CA Espie, J Metcalfe, MJ Brodie… - Seizure, 2004 - Elsevier
The majority of previous studies investigating the impact of epilepsy on the QOL of
adolescents have used proxy opinions from clinicians and/or parents. This study highlights …
adolescents have used proxy opinions from clinicians and/or parents. This study highlights …