Pediatrician as Advocate and Protector: An Approach to Medical Neglect for Children with Medical Complexity.

RR Seltzer, BS Thompson - Pediatric Clinics of North America, 2023 - europepmc.org
For children with medical complexity (CMC), gaps in medical care can result in significant
harm. When concerns for medical neglect arise for CMC, pediatricians may experience …

Care management for children who are medically fragile/technology-dependent

CC Lewis, A Alford-Winston… - Issues in …, 1992 - Taylor & Francis
Care management is a nursing role that has received more attention over the past decade
as the number of children with special health-care needs has increased. The particular role …

Importance and feasibility of transitional care for children with medical complexity: results of a multistakeholder Delphi process

JAK Leyenaar, PA Rizzo, D Khodyakov, LK Leslie… - Academic pediatrics, 2018 - Elsevier
Background Children with medical complexity (CMC) account for disproportionate hospital
utilization and adverse outcomes after discharge, and several gaps exist regarding the …

Health care services for adolescents: are we meeting developmental needs?

JM Gallagher - Journal of the American Association of Nurse …, 1999 - journals.lww.com
Problems associated with adolescence in the United States in the 1990s are numerous and
severe. The adolescent pregnancy rate, while declining, is still a problem of enormous …

The Goldilocks problem: Healthcare delivery models for children with medical complexity

MM Galligan, AK Hogan - Current Problems in Pediatric and Adolescent …, 2021 - Elsevier
Health systems have increasingly adapted elements of the medical home model in
designing complex care programs for children with medical complexity (CMC). In recent …

Most children with medical complexity do not receive care in well-functioning health care systems

JA Yu, G McKernan, T Hagerman… - Hospital …, 2021 - publications.aap.org
OBJECTIVES: To describe the access of children with medical complexity (CMC) to well-
functioning health care systems. To examine the relationships between medical complexity …

Children and youth with disabilities and public health: A model syllabus for health professionals

DM Noyes-Grosser - Infants & Young Children, 2007 - journals.lww.com
Programs and services traditionally included in the purview of public health—such as
Medicaid and Title V of the Social Security Act—have an important role to play in services to …

[HTML][HTML] Health equity for children and youth with special health care needs: a vision for the future

A Houtrow, AJ Martin, D Harris, D Cejas, R Hutson… - …, 2022 - publications.aap.org
Health equity is a key pillar in supporting a future in which CYSHCN enjoy a full life and
thrive, as envisioned by experts and community partners who gathered in 2019 and 2020 to …

Healthcare utilization for Medicaid-insured children with medical complexity: differences by sociodemographic characteristics

DY Ming, KA Jones, MJ White, JE Pritchard… - Maternal and child …, 2022 - Springer
Objective To compare differences in healthcare utilization and costs for Medicaid-insured
children with medical complexity (CMC) by race/ethnicity and rurality. Methods …

A blueprint for change: guiding principles for a system of services for children and youth with special health care needs and their families

SE McLellan, MY Mann, JA Scott, TW Brown - Pediatrics, 2022 - publications.aap.org
Sarah E. McLellan, MPH, Marie Y. Mann, MD, MPH, FAAP, Joan A. Scott, MS, CGC, Treeby
W. Brown, MA abstract Children and youth with special health care needs (CYSHCN) and …