Informed consent and the misattributed paternity problem in genetic counseling

EK Lucast - Bioethics, 2007 - Wiley Online Library
When misattributed paternity is discovered in the course of genetic testing, a genetic
counselor is presented with a dilemma concerning whether to reveal this information to the …

Consent and confidentiality in genetics: whose information is it anyway?

A Kent - Journal of Medical Ethics, 2003 - jme.bmj.com
Against a background of increasing regulation regarding access to medical information and
the presentation of patients' confidentiality, the case of genetic information raises interesting …

Genetic knowledge and third-party interests

E Boetzkes - Cambridge Quarterly of Healthcare Ethics, 1999 - cambridge.org
Recent discussions of genetic information have highlighted the need for ethical disclosure
guidelines. For instance, the (Canadian) Royal Commission on New Reproductive …

Consent to genetic testing: a family affair

N Hallowell - The limits to consent: a socio-ethical approach to …, 2009 - books.google.com
This chapter will explore the extent to which the familial nature of genetic information creates
an ethical problem for our current conceptions of informed consent in the context of genetic …

Disclosure and consent: In search of their roots

J Katz - Genetics and the Law II, 1980 - Springer
In my admittedly limited reading on genetic counseling, I have been struck by genetic
counselors' preoccupation with the question of how much authority they should exercise in …

Lethal autonomy: The malfunction of the informed consent mechanism within the context of prenatal diagnosis of genetic variants

C Dunne, C Warren - Issues L. & Med., 1998 - HeinOnline
In this article, Cara Dunne and Catherine Warren challenge the current role of genetic
counselors in advising expectant mothers about potential genetic defects of their fetuses …

Familial disclosure in defiance of nonconsent

JF Merz, MK Cho, P Sankar - The American Journal of Human Genetics, 1998 - cell.com
The ASHG statement on “Professional Disclosure of Familial Genetic Information”(American
Society of Human Genetics Social Issues Subcommittee on Familial Disclosure 1998) …

Disclosing misattributed paternity

LF Ross - Bioethics, 1996 - Wiley Online Library
ABSTRACT In 1994, the Committee on Assessing Genetic Risks of the Institute of Medicine
published their recommendations regarding the ethical issues raised by advances in …

Allowing agency: An ethical model for communicating personal genetic information

C Rehmann-Sutter - … Dilemmas: Ethics of Genetic Prognosis after …, 2009 - books.google.com
The increasing availability of personal genetic information (a term that we will have to
define) creates situations containing challenging, sometimes even morally coercive …

'Is this knowledge mine and nobody else's? I don't feel that.'Patient views about consent, confidentiality and information-sharing in genetic medicine

S Dheensa, A Fenwick, A Lucassen - Journal of Medical Ethics, 2016 - jme.bmj.com
In genetic medicine, a patient's diagnosis can mean their family members are also at risk,
raising a question about how consent and confidentiality should function in clinical genetics …