Disability training in the genetic counseling curricula: bridging the gap between genetic counselors and the disability community
E Sanborn, AR Patterson - … Journal of Medical Genetics Part A, 2014 - Wiley Online Library
Over the past two decades, disability activists, ethicists, and genetic counselors have
examined the moral complexities inherent in prenatal genetic counseling and considered …
examined the moral complexities inherent in prenatal genetic counseling and considered …
Disability education and implications for genetic counselor training
L Douglas, J Czerwinski, R Vukovic… - Journal of Genetic …, 2023 - Wiley Online Library
The genetic counseling (GC) community has faced criticism about the duality of promoting
patient autonomy while also advocating for individuals with disabilities. This study assessed …
patient autonomy while also advocating for individuals with disabilities. This study assessed …
The relationship between the genetic counseling profession and the disability community: a commentary
AC Madeo, BB Biesecker, C Brasington… - American journal of …, 2011 - Wiley Online Library
Since the inception of the field of genetic counseling, the profession has had a tenuous
relationship with the disability community. Genetic counselors both offer prenatal diagnostic …
relationship with the disability community. Genetic counselors both offer prenatal diagnostic …
[引用][C] Are genetic counselors just misunderstood? Thoughts on “The relationship between the genetic counseling profession and the disability community: A …
R Resta - American Journal of Medical Genetics Part A, 2011 - Wiley Online Library
Genetic counselors and medical geneticists are by and large good people and highly
competent professionals who strive to help patients and their families cope with the complex …
competent professionals who strive to help patients and their families cope with the complex …
Disability training for genetic counseling students: The advocates' perspective
D Winchester, L Karger… - Journal of Genetic …, 2023 - Wiley Online Library
The genetics and disability communities have had a complicated relationship that is rooted
in the history of the eugenics movement. Disability scholars claim that in order for healthcare …
in the history of the eugenics movement. Disability scholars claim that in order for healthcare …
Commentary: how individual and profession-level factors influence discussion of disability in prenatal genetic counseling
J Hodgson, J Weil - Journal of Genetic Counseling, 2012 - Springer
Abstract Hodgson and Weil (Journal of Genetic Counseling, 2011) reports on two interactive
workshops in which genetic counselors identified a broad set of counseling issues that may …
workshops in which genetic counselors identified a broad set of counseling issues that may …
[引用][C] Embracing the unique role of genetic counselors: Response to the commentary by Madeo et al.
KM Dent, C Harper, L Kearney… - American Journal of …, 2011 - Wiley Online Library
Genetic counselors have long recognized and acknowledged the important relationship
between our profession and the disability community. We embrace unique and challenging …
between our profession and the disability community. We embrace unique and challenging …
Experiences of genetic counseling students with disabilities and chronic illnesses: A qualitative study
R Epstein, L Fuerstman, A Heidlebaugh… - Journal of Genetic …, 2023 - Wiley Online Library
While many patients with disabilities or chronic illnesses are served by genetic counselors,
little effort has been made to promote the inclusion of individuals with disabilities and …
little effort has been made to promote the inclusion of individuals with disabilities and …
Genetic counseling for prenatal testing: where is the discussion about disability?
There are little data revealing how genetic counselors talk about disability in the prenatal
setting. We performed a qualitative analysis of 93 existing transcripts from simulated patient …
setting. We performed a qualitative analysis of 93 existing transcripts from simulated patient …
Disability experiences and perspectives regarding reproductive decisions, parenting, and the utility of genetic services: A qualitative study
C Roadhouse, C Shuman, K Anstey… - Journal of Genetic …, 2018 - Springer
Genetic counselors adopt seemingly contradictory roles: advocating for individuals with
genetic conditions while offering prenatal diagnosis and the option of selective termination …
genetic conditions while offering prenatal diagnosis and the option of selective termination …