I knew what was going to happen if I did nothing and so I was going to do something”: Faith, hope, and trust in the decisions of Canadians with multiple sclerosis to …

J Snyder, K Adams, VA Crooks, D Whitehurst… - BMC health services …, 2014 - Springer
Background Chronic cerebrospinal venous insufficiency (CCSVI) treatment is an unproven
intervention aimed at relieving some of the symptoms of multiple sclerosis (MS). Despite …

[HTML][HTML] Examining the Type, Quality, and Content of Web-Based Information for People With Chronic Pain Interested in Spinal Cord Stimulation: Social Listening …

M Moens, L Van Doorslaer, M Billot, E Eeckman… - Journal of Medical …, 2024 - jmir.org
Background The increased availability of web-based medical information has encouraged
patients with chronic pain to seek health care information from multiple sources, such as …

Navigating the “liberation procedure”: a qualitative study of motivating and hesitating factors among people with multiple sclerosis

M Ploughman, C Harris, SH Hogan… - Patient preference …, 2014 - Taylor & Francis
Background The debate within the multiple sclerosis (MS) community initiated by the chronic
cerebrospinal venous insufficiency (CCSVI) hypothesis and the subsequent liberation …

Fake news, influencers and health-related professional participation on the Web: A pilot study on a social-network of people with Multiple Sclerosis

L Lavorgna, M De Stefano, M Sparaco… - Multiple sclerosis and …, 2018 - Elsevier
Background Over the last few decades, patients have increasingly been searching for health
information on the Internet. This aspect of information seeking is important, especially for …

[HTML][HTML] Preferred sources of health information in persons with multiple sclerosis: degree of trust and information sought

RA Marrie, AR Salter, T Tyry, RJ Fox… - Journal of Medical Internet …, 2013 - jmir.org
Background: Effective health communication is important for informed decision-making, yet
little is known about the range of information sources used by persons with multiple sclerosis …

[HTML][HTML] Building a successful massive open online course about multiple sclerosis: a process description

SB Claflin, R Gates, M Maher, BV Taylor - Journal of medical Internet …, 2020 - jmir.org
Background Over the course of a year, we developed and tested a 6-week massive open
online course (MOOC) on multiple sclerosis (MS) in consultation with the MS community …

[HTML][HTML] Googling for neurological disorders: from seeking health-related information to patient empowerment, advocacy, and open, public self-disclosure in the …

M Martini, NL Bragazzi - Journal of Medical Internet Research, 2021 - jmir.org
Since its introduction, the internet has played a major role in reshaping patient-physician
communication and interactions, having fostered a shift from a paternalistic to a patient …

The perfect crime? CCSVI not leaving a trace in MS

CA Mayer, W Pfeilschifter, MW Lorenz… - Journal of Neurology …, 2011 - jnnp.bmj.com
Background Multiple sclerosis (MS) is a chronic, inflammatory demyelinating disease of the
central nervous system, believed to be triggered by an autoimmune reaction to myelin …

Chronic cerebrospinal venous insufficiency is not associated with cognitive impairment in multiple sclerosis

RHB Benedict, B Weinstock-Guttmam, K Marr… - BMC medicine, 2013 - Springer
Background Chronic cerebrospinal venous insufficiency (CCSVI) has been reported in
multiple sclerosis (MS) yet its significance in relation to cognitive function is undetermined …

Chronic cerebrospinal venous insufficiency

J Antel, A Thompson, W Carroll - Multiple Sclerosis Journal, 2010 - journals.sagepub.com
The initial peer-review publications by Zamboni and colleagues described cerebral venous
circulatory patterns in patients with multiple sclerosis (MS) that were distinct from those …