Impact of a multimedia website with patient experiences of multiple sclerosis (PExMS) on immunotherapy decision-making: study protocol for a pilot randomised …
A Barabasch, K Riemann-Lorenz, C Kofahl… - Pilot and Feasibility …, 2021 - Springer
Background A variety of management options (eg immunotherapies, lifestyle interventions,
and rehabilitation) are available for people with relapsing-remitting multiple sclerosis …
and rehabilitation) are available for people with relapsing-remitting multiple sclerosis …
[HTML][HTML] Linked patient-reported outcomes data from patients with multiple sclerosis recruited on an open internet platform to health care claims databases identifies a …
V Risson, B Ghodge, IC Bonzani, JR Korn… - Journal of Medical …, 2016 - jmir.org
Background An enormous amount of information relevant to public health is being
generated directly by online communities. Objective To explore the feasibility of creating a …
generated directly by online communities. Objective To explore the feasibility of creating a …
How to refer to people with disease in research outputs: The disconnection between academic practise and that preferred by people with multiple sclerosis
D Baker, A Anandhakrishnan, KA Tuite-Dalton… - Multiple Sclerosis and …, 2016 - Elsevier
Abstract Background Increasingly, Government and Charity funders require public
engagement in research. Invariably these research outputs describe the condition of …
engagement in research. Invariably these research outputs describe the condition of …
[HTML][HTML] The impact of social media on dissemination and implementation of clinical practice guidelines: a longitudinal observational study
P Narayanaswami, G Gronseth, R Dubinsky… - Journal of medical …, 2015 - jmir.org
Background: Evidence-based clinical practice guidelines (CPGs) are statements that
provide recommendations to optimize patient care for a specific clinical problem or question …
provide recommendations to optimize patient care for a specific clinical problem or question …
Development and validation of a patient self-assessed questionnaire on satisfaction with communication of the multiple sclerosis diagnosis
Background: We describe the development and clinical validation of a patient self-
administered tool assessing the quality of multiple sclerosis diagnosis disclosure. Method: A …
administered tool assessing the quality of multiple sclerosis diagnosis disclosure. Method: A …
[HTML][HTML] Chronic cerebrospinal venous insufficiency: the end of “The Big Idea”?
E Stolz - Brain and Behavior, 2015 - ncbi.nlm.nih.gov
As early as 1863 Eduard Rindfleisch described and systematically studied the topographic
relationship between multiple sclerosis (MS) plaques and brain tissue venules frequently …
relationship between multiple sclerosis (MS) plaques and brain tissue venules frequently …
Development and assessment of a website presenting evidence-based information for people with multiple sclerosis: the IN-DEEP project
Background People with multiple sclerosis (MS) are increasingly using the Internet in the
daily management of their condition. They search for high-quality information in plain …
daily management of their condition. They search for high-quality information in plain …
Chronic cerebrospinal venous insufficiency and venous stenoses in multiple sclerosis
M Blinkenberg, P Åkeson, H Sillesen… - Acta neurologica …, 2012 - Wiley Online Library
Objectives The traditional view that multiple sclerosis (MS) is an autoimmune disease has
recently been challenged by the claim that MS is caused by chronic cerebrospinal venous …
recently been challenged by the claim that MS is caused by chronic cerebrospinal venous …
Communicating the diagnosis of multiple sclerosis: results of a survey among Greek neurologists
P Papathanasopoulos, L Messinis, E Lyros… - Journal of …, 2008 - Springer
In the frame of current treatment options for multiple sclerosis (MS) and recommendations for
early intervention, we investigated the practice and attitudes of neurologists towards MS …
early intervention, we investigated the practice and attitudes of neurologists towards MS …
Systematic review of sonographic chronic cerebrospinal venous insufficiency findings in multiple sclerosis
Objective The sonographic findings of chronic cerebrospinal venous insufficiency (CCSVI)
are used by some as selection criteria for venography. We performed a systematic review to …
are used by some as selection criteria for venography. We performed a systematic review to …