Impact of a multimedia website with patient experiences of multiple sclerosis (PExMS) on immunotherapy decision-making: study protocol for a pilot randomised …

A Barabasch, K Riemann-Lorenz, C Kofahl… - Pilot and Feasibility …, 2021 - Springer
Background A variety of management options (eg immunotherapies, lifestyle interventions,
and rehabilitation) are available for people with relapsing-remitting multiple sclerosis …

[HTML][HTML] Linked patient-reported outcomes data from patients with multiple sclerosis recruited on an open internet platform to health care claims databases identifies a …

V Risson, B Ghodge, IC Bonzani, JR Korn… - Journal of Medical …, 2016 - jmir.org
Background An enormous amount of information relevant to public health is being
generated directly by online communities. Objective To explore the feasibility of creating a …

How to refer to people with disease in research outputs: The disconnection between academic practise and that preferred by people with multiple sclerosis

D Baker, A Anandhakrishnan, KA Tuite-Dalton… - Multiple Sclerosis and …, 2016 - Elsevier
Abstract Background Increasingly, Government and Charity funders require public
engagement in research. Invariably these research outputs describe the condition of …

[HTML][HTML] The impact of social media on dissemination and implementation of clinical practice guidelines: a longitudinal observational study

P Narayanaswami, G Gronseth, R Dubinsky… - Journal of medical …, 2015 - jmir.org
Background: Evidence-based clinical practice guidelines (CPGs) are statements that
provide recommendations to optimize patient care for a specific clinical problem or question …

Development and validation of a patient self-assessed questionnaire on satisfaction with communication of the multiple sclerosis diagnosis

A Solari, K Mattarozzi, L Vignatelli… - Multiple Sclerosis …, 2010 - journals.sagepub.com
Background: We describe the development and clinical validation of a patient self-
administered tool assessing the quality of multiple sclerosis diagnosis disclosure. Method: A …

[HTML][HTML] Chronic cerebrospinal venous insufficiency: the end of “The Big Idea”?

E Stolz - Brain and Behavior, 2015 - ncbi.nlm.nih.gov
As early as 1863 Eduard Rindfleisch described and systematically studied the topographic
relationship between multiple sclerosis (MS) plaques and brain tissue venules frequently …

Development and assessment of a website presenting evidence-based information for people with multiple sclerosis: the IN-DEEP project

C Colombo, G Filippini, A Synnot, S Hill, R Guglielmino… - BMC neurology, 2016 - Springer
Background People with multiple sclerosis (MS) are increasingly using the Internet in the
daily management of their condition. They search for high-quality information in plain …

Chronic cerebrospinal venous insufficiency and venous stenoses in multiple sclerosis

M Blinkenberg, P Åkeson, H Sillesen… - Acta neurologica …, 2012 - Wiley Online Library
Objectives The traditional view that multiple sclerosis (MS) is an autoimmune disease has
recently been challenged by the claim that MS is caused by chronic cerebrospinal venous …

Communicating the diagnosis of multiple sclerosis: results of a survey among Greek neurologists

P Papathanasopoulos, L Messinis, E Lyros… - Journal of …, 2008 - Springer
In the frame of current treatment options for multiple sclerosis (MS) and recommendations for
early intervention, we investigated the practice and attitudes of neurologists towards MS …

Systematic review of sonographic chronic cerebrospinal venous insufficiency findings in multiple sclerosis

A Thapar, T Lane, R Nicholas, T Friede, M Ellis… - …, 2011 - journals.sagepub.com
Objective The sonographic findings of chronic cerebrospinal venous insufficiency (CCSVI)
are used by some as selection criteria for venography. We performed a systematic review to …