Decision-making in multiple sclerosis consultations in Italy: third observer and patient assessments

E Pietrolongo, A Giordano, M Kleinefeld… - PLoS …, 2013 - journals.plos.org
Objective To assess decision-making in multiple sclerosis (MS) from third observer and
patient perspectives. Method Audio recordings of first-ever consultations with a participating …

Participation in medical decision-making: attitudes of Italians with multiple sclerosis

A Giordano, K Mattarozzi, E Pucci, M Leone… - Journal of the …, 2008 - Elsevier
BACKGROUND: Patient involvement in decisions regarding their care has been advocated,
but preferences have not been adequately canvassed, particularly in people with multiple …

Decisional role preferences, risk knowledge and information interests in patients with multiple sclerosis

C Heesen, J Kasper, J Segal, S Köpke… - Multiple Sclerosis …, 2004 - journals.sagepub.com
Objective: Shared decision making is increasingly recognized as the ideal model of patient-
physician communication especially in chronic diseases with partially effective treatments as …

Patients' and observers' perceptions of involvement differ. Validation study on inter-relating measures for shared decision making

J Kasper, C Heesen, S Köpke, G Fulcher, F Geiger - PloS one, 2011 - journals.plos.org
Objective Patient involvement into medical decisions as conceived in the shared decision
making method (SDM) is essential in evidence based medicine. However, it is not …

Informed shared decision making in multiple sclerosis—inevitable or impossible?

C Heesen, J Kasper, S Köpke, T Richter, J Segal… - Journal of the …, 2007 - Elsevier
Patients and health authorities increasingly claim active roles in health care decision making
processes. As immune therapies in MS are partially effective MS is a prototypic condition for …

Shared decision making and selfmanagement in multiple sclerosis–a consequence of evidence

C Heesen, S Köpke, T Richter, J Kasper - Journal of Neurology, 2007 - Springer
Shared decision making is increasingly recognised as the ideal model of patient-physician
communication especially in chronic diseases with partially effective treatments such as …

Communicating the diagnosis of multiple sclerosis: results of a survey among Greek neurologists

P Papathanasopoulos, L Messinis, E Lyros… - Journal of …, 2008 - Springer
In the frame of current treatment options for multiple sclerosis (MS) and recommendations for
early intervention, we investigated the practice and attitudes of neurologists towards MS …

Informed shared decision making about immunotherapy for patients with multiple sclerosis (ISDIMS): a randomized controlled trial

J Kasper, S Köpke, I Mühlhauser… - European Journal of …, 2008 - Wiley Online Library
Background and purpose: To evaluate the effects of an evidence‐based patient decision aid
(DA) on multiple sclerosis (MS) immunotherapy. Methods: Two hundred and ninety‐seven …

Experiences of diagnosis and treatment among people with multiple sclerosis

RG Edwards, JH Barlow… - Journal of evaluation in …, 2008 - Wiley Online Library
Rationale, aims and objectives The aim of this qualitative study was to examine patients'
experiences of being diagnosed with multiple sclerosis (MS), the information that they were …

Patient expression of emotions and neurologist responses in first multiple sclerosis consultations

L Del Piccolo, E Pietrolongo, D Radice, C Tortorella… - PLoS …, 2015 - journals.plos.org
Background Anxiety and depression are common in people with multiple sclerosis (MS), but
data on emotional communication during MS consultations are lacking. We assessed patient …