Prioritisation of future research topics for children's hospice care by its key stakeholders: a Delphi study

C Malcolm, K Knighting, L Forbat… - Palliative …, 2009 - journals.sagepub.com
The Delphi process, widely used in health research to seek consensus on key issues
amongst large stakeholder groups, was adopted to allow families, hospice staff/volunteers …

A tool for guiding goal-concordant medical recommendations in paediatric serious illness

AS Porter, JE Freitas, EM Frechette… - BMJ Supportive & …, 2023 - spcare.bmj.com
For paediatric patients with serious illness and their families, medical decision making is
complex. 1 Shared decision making requires the clinical team to clearly communicate …

Paediatric Palliative Care in the United Kingdom

M Baba, R Hain - Pediatric palliative care: Global perspectives, 2012 - Springer
Abstract In the United Kingdom (UK), paediatric palliative care is defined by the Royal
College of Paediatrics and Child Health (RCPCH) and the Association for Children with Life …

Impact of specialized pediatric palliative care programs on communication and decision-making

JC Streuli, K Widger, C Medeiros… - Patient education and …, 2019 - Elsevier
Objective To summarize and analyze the impact of specialized pediatric palliative care
(SPPC) programs on communication and decision-making for children with life-threatening …

[HTML][HTML] Challenges in establishing optimal pediatric palliative care at the university hospital in Slovenia

J Meglič, A Lisec, D Lepej, T Loboda, S Bertok… - European Journal of …, 2023 - Springer
The integration of pediatric palliative care (PPC) should become a standard of care for all
children with life-limiting and life-threatening illnesses. There are many barriers and …

Instruments to measure outcomes in pediatric palliative care: a systematic review

M Friedel, I Aujoulat, AC Dubois, JM Degryse - Pediatrics, 2019 - publications.aap.org
OBJECTIVE: To review the instruments used to assess the impact of PPC interventions.
DATA SOURCES: Five databases (Embase, Scopus, The Cochrane Library, PsychInfo …

Enhancing paediatric palliative care: A rapid review to inform continued development of care for children with life‐limiting conditions

S Ekberg, A Bowers, N Bradford… - … of Paediatrics and …, 2022 - Wiley Online Library
Aim Following the establishment of paediatric palliative care services over recent decades,
this study sought to identify information to inform future policy and practice. Methods A rapid …

[HTML][HTML] A call to improve paediatric palliative care quality through research

L Dombrecht, A Lacerda, J Wolfe, J Snaman - BMC Palliative Care, 2023 - Springer
Paediatric palliative care is needed now more than ever. Medical and technological
advances mean that children with complex chronic conditions are surviving longer …

The role of the pharmacist in paediatric palliative care

J Khan, S Gaze, S Tomlin - Archives of Disease in Childhood, 2016 - adc.bmj.com
Aim To explore what involvement pharmacists in the UK have in paediatric palliative care
Objectives 1. To determine the current roles and services provided by pharmacists to …

Facilitators and barriers to the delivery of palliative care to children with life-limiting and life-threatening conditions: a qualitative study of the experiences and …

S Mitchell, AM Slowther, J Coad, S Bertaud… - Archives of Disease in …, 2022 - adc.bmj.com
Objective To understand healthcare system facilitators and barriers to the delivery of
palliative care for children with life-limiting and life-threatening conditions and their family …