Prioritisation of future research topics for children's hospice care by its key stakeholders: a Delphi study
C Malcolm, K Knighting, L Forbat… - Palliative …, 2009 - journals.sagepub.com
The Delphi process, widely used in health research to seek consensus on key issues
amongst large stakeholder groups, was adopted to allow families, hospice staff/volunteers …
amongst large stakeholder groups, was adopted to allow families, hospice staff/volunteers …
A tool for guiding goal-concordant medical recommendations in paediatric serious illness
AS Porter, JE Freitas, EM Frechette… - BMJ Supportive & …, 2023 - spcare.bmj.com
For paediatric patients with serious illness and their families, medical decision making is
complex. 1 Shared decision making requires the clinical team to clearly communicate …
complex. 1 Shared decision making requires the clinical team to clearly communicate …
Paediatric Palliative Care in the United Kingdom
M Baba, R Hain - Pediatric palliative care: Global perspectives, 2012 - Springer
Abstract In the United Kingdom (UK), paediatric palliative care is defined by the Royal
College of Paediatrics and Child Health (RCPCH) and the Association for Children with Life …
College of Paediatrics and Child Health (RCPCH) and the Association for Children with Life …
Impact of specialized pediatric palliative care programs on communication and decision-making
JC Streuli, K Widger, C Medeiros… - Patient education and …, 2019 - Elsevier
Objective To summarize and analyze the impact of specialized pediatric palliative care
(SPPC) programs on communication and decision-making for children with life-threatening …
(SPPC) programs on communication and decision-making for children with life-threatening …
[HTML][HTML] Challenges in establishing optimal pediatric palliative care at the university hospital in Slovenia
J Meglič, A Lisec, D Lepej, T Loboda, S Bertok… - European Journal of …, 2023 - Springer
The integration of pediatric palliative care (PPC) should become a standard of care for all
children with life-limiting and life-threatening illnesses. There are many barriers and …
children with life-limiting and life-threatening illnesses. There are many barriers and …
Instruments to measure outcomes in pediatric palliative care: a systematic review
M Friedel, I Aujoulat, AC Dubois, JM Degryse - Pediatrics, 2019 - publications.aap.org
OBJECTIVE: To review the instruments used to assess the impact of PPC interventions.
DATA SOURCES: Five databases (Embase, Scopus, The Cochrane Library, PsychInfo …
DATA SOURCES: Five databases (Embase, Scopus, The Cochrane Library, PsychInfo …
Enhancing paediatric palliative care: A rapid review to inform continued development of care for children with life‐limiting conditions
Aim Following the establishment of paediatric palliative care services over recent decades,
this study sought to identify information to inform future policy and practice. Methods A rapid …
this study sought to identify information to inform future policy and practice. Methods A rapid …
[HTML][HTML] A call to improve paediatric palliative care quality through research
Paediatric palliative care is needed now more than ever. Medical and technological
advances mean that children with complex chronic conditions are surviving longer …
advances mean that children with complex chronic conditions are surviving longer …
The role of the pharmacist in paediatric palliative care
J Khan, S Gaze, S Tomlin - Archives of Disease in Childhood, 2016 - adc.bmj.com
Aim To explore what involvement pharmacists in the UK have in paediatric palliative care
Objectives 1. To determine the current roles and services provided by pharmacists to …
Objectives 1. To determine the current roles and services provided by pharmacists to …
Facilitators and barriers to the delivery of palliative care to children with life-limiting and life-threatening conditions: a qualitative study of the experiences and …
S Mitchell, AM Slowther, J Coad, S Bertaud… - Archives of Disease in …, 2022 - adc.bmj.com
Objective To understand healthcare system facilitators and barriers to the delivery of
palliative care for children with life-limiting and life-threatening conditions and their family …
palliative care for children with life-limiting and life-threatening conditions and their family …