Background Large-scale, centralized data repositories are playing a critical and
unprecedented role in fostering innovative health research, leading to new opportunities as …

This paper reports survey findings on the Swiss public's willingness, attitudes, and concerns
regarding personalized health research participation by providing health information and …

Background Biobanks and biomedical research data repositories collect their samples and
associated data from volunteer participants. Their aims are to facilitate biomedical research …

Background The design of appropriate consent procedures for the secondary use of
personal health data is a key concern of current medical research. In Germany, the concept …

Aim: To understand participants' actual motivations to enroll in cohort studies with biobanks.
Methods: Participants of two such studies currently ongoing in Germany were invited to fill in …

Data repositories, like research biobanks, seek to optimise the number of responding
participants while simultaneously attempting to increase the amount of data donated per …

Reliable participation and sustained retention rates are crucial in longitudinal studies
involving human subjects and biomaterials. Understanding the decision to enroll is an …

Background Data-intensive and needs-driven research can deliver substantial health
benefits. However, concerns with privacy loss, undisclosed surveillance, and discrimination …

Objectives This article aims to measure the willingness of the Swiss public to participate in
personalised health research, and their preferences regarding data management and …

Research in genetics relies heavily on voluntary contributions of personal data. We aimed to
acquire insights into the differences between participants and refusers of participation in a …