Comment on a view favoring ignorance of genetic information: Confidentiality, autonomy, beneficence and the right not to know
MC Bottis - European Journal of Health Law, 2000 - JSTOR
In June 1999, the European Journal of Health Law published an article, by Graeme Laurie,
on the right of the relatives of a patient not to know genetic information not only concerning …
on the right of the relatives of a patient not to know genetic information not only concerning …
In defence of ignorance: genetic information and the right not to know
GT Laurie - European journal of health law, 1999 - JSTOR
This article considers two concepts which have for a long time received short shrift in the
field of medical law and ethics: ignorance and privacy. By'ignorance'is not meant wilful …
field of medical law and ethics: ignorance and privacy. By'ignorance'is not meant wilful …
Protecting and promoting privacy in an uncertain world: further defences of ignorance and the right not to know
GT Laurie - Eur. J. Health L., 2000 - HeinOnline
I welcome the opportunity to respond to the article by Dr Canellopoulou Bottis which
discusses my work'In Defence of Ignorance: Genetic Information and the Right Not to Know' …
discusses my work'In Defence of Ignorance: Genetic Information and the Right Not to Know' …
Genetics and confidentiality
DW Brock - American Journal of Bioethics, 2001 - Taylor & Francis
David Doukas and Jessica Berg's (2001) proposal for the use of a family covenant in genetic
testing has promise in helping ensure that genetic information with important consequences …
testing has promise in helping ensure that genetic information with important consequences …
Patient autonomy and relatives' right to know genetic information
R Gilbar - Med. & L., 2007 - HeinOnline
One of the most difficult issues doctors face is a conflict between their professional duties.
Such a conflict may arise when doctors know that information has implications not only for …
Such a conflict may arise when doctors know that information has implications not only for …
What should the law say about disclosure of genetic information to relatives
EW Clayton - J. Health Care L. & Pol'y, 1998 - HeinOnline
When a person is diagnosed with a genetic disease or characteristic, his or her relatives are
more likely than others in the general population to be similarly affected. This fact raises a …
more likely than others in the general population to be similarly affected. This fact raises a …
Is there a duty to remain in ignorance?
I Brassington - Theoretical medicine and bioethics, 2011 - Springer
Questions about information inform many debates in bioethics. One of the reasons for this is
that at least some level of information is taken by many to be a prerequisite of valid consent …
that at least some level of information is taken by many to be a prerequisite of valid consent …
Testing the limits of the 'joint account'model of genetic information: a legal thought experiment
We examine the likely reception in the courtroom of the 'joint account'model of genetic
confidentiality. We conclude that the model, as modified by Gilbar and others, is workable …
confidentiality. We conclude that the model, as modified by Gilbar and others, is workable …
Challenging medical-legal norms: the role of autonomy, confidentiality, and privacy in protecting individual and familial group rights in genetic information
GT Laurie - Journal of Legal Medicine, 2001 - Taylor & Francis
Much ink has been spilled discussing the ramifi cations of genetic advances for individuals,
communities, and society at large. A central concern has been the problem of regulating …
communities, and society at large. A central concern has been the problem of regulating …
The right not to know: an autonomy based approach
R Andorno - Journal of medical ethics, 2004 - jme.bmj.com
The emerging international biomedical law tends to recognise the right not to know one's
genetic status. However, the basis and conditions for the exercise of this right remain …
genetic status. However, the basis and conditions for the exercise of this right remain …