Comment on a view favoring ignorance of genetic information: Confidentiality, autonomy, beneficence and the right not to know

MC Bottis - European Journal of Health Law, 2000 - JSTOR
In June 1999, the European Journal of Health Law published an article, by Graeme Laurie,
on the right of the relatives of a patient not to know genetic information not only concerning …

In defence of ignorance: genetic information and the right not to know

GT Laurie - European journal of health law, 1999 - JSTOR
This article considers two concepts which have for a long time received short shrift in the
field of medical law and ethics: ignorance and privacy. By'ignorance'is not meant wilful …

Protecting and promoting privacy in an uncertain world: further defences of ignorance and the right not to know

GT Laurie - Eur. J. Health L., 2000 - HeinOnline
I welcome the opportunity to respond to the article by Dr Canellopoulou Bottis which
discusses my work'In Defence of Ignorance: Genetic Information and the Right Not to Know' …

Genetics and confidentiality

DW Brock - American Journal of Bioethics, 2001 - Taylor & Francis
David Doukas and Jessica Berg's (2001) proposal for the use of a family covenant in genetic
testing has promise in helping ensure that genetic information with important consequences …

Patient autonomy and relatives' right to know genetic information

R Gilbar - Med. & L., 2007 - HeinOnline
One of the most difficult issues doctors face is a conflict between their professional duties.
Such a conflict may arise when doctors know that information has implications not only for …

What should the law say about disclosure of genetic information to relatives

EW Clayton - J. Health Care L. & Pol'y, 1998 - HeinOnline
When a person is diagnosed with a genetic disease or characteristic, his or her relatives are
more likely than others in the general population to be similarly affected. This fact raises a …

Is there a duty to remain in ignorance?

I Brassington - Theoretical medicine and bioethics, 2011 - Springer
Questions about information inform many debates in bioethics. One of the reasons for this is
that at least some level of information is taken by many to be a prerequisite of valid consent …

Testing the limits of the 'joint account'model of genetic information: a legal thought experiment

C Foster, J Herring, M Boyd - Journal of medical ethics, 2015 - jme.bmj.com
We examine the likely reception in the courtroom of the 'joint account'model of genetic
confidentiality. We conclude that the model, as modified by Gilbar and others, is workable …

Challenging medical-legal norms: the role of autonomy, confidentiality, and privacy in protecting individual and familial group rights in genetic information

GT Laurie - Journal of Legal Medicine, 2001 - Taylor & Francis
Much ink has been spilled discussing the ramifi cations of genetic advances for individuals,
communities, and society at large. A central concern has been the problem of regulating …

The right not to know: an autonomy based approach

R Andorno - Journal of medical ethics, 2004 - jme.bmj.com
The emerging international biomedical law tends to recognise the right not to know one's
genetic status. However, the basis and conditions for the exercise of this right remain …