T he aphorism that'information is power'has never been truer than in the context of genetic
information. And the question of who may legitimately exercise that power is central to the …

Communicating genetic information to family members has been the subject of an extensive
debate recently in bioethics and law. In this context, the extent of the relatives' right to know …

This comparative legal study on confidentiality in genetic testing examines three levels of
communication of genetic Information: the personal; the familial; and the institutional third …

Amy, a long-term patient of yours, has been diagnosed with a bipolar disorder that has a
hereditary component likely to manifest itself in some of her relatives. While efforts to identify …

This article is based in three ideas, namely: 1. All the questions in the field of" privacy" and"
confidentiality" derived from genetic tests only must be taken into account if we deal with" …

The right to genetic privacy is presently being incorporated in legal systems all over the
world. It remains largely unclear however what interests and values this right serves to …

In my admittedly limited reading on genetic counseling, I have been struck by genetic
counselors' preoccupation with the question of how much authority they should exercise in …

We have witnessed in this decade a veritable explosion in both our understanding of
genetics and our exposure to genetic information.! From Dolly the cloned sheep 2 to DNA …

The “right not to know” has generated significant discussion, especially regarding genetic
information. In this paper, I argue that this purported right is better understood as a …

The idea that an individual has a 'right not to know'genetic information about himself or
herself is entrenched in both the policy sphere and the genetic counselling ethos. In this …