Shortening and validation of the Patient Engagement In Research Scale (PEIRS) for measuring meaningful patient and family caregiver engagement

CB Hamilton, AM Hoens, AM McKinnon… - Health …, 2021 - Wiley Online Library
Abstract Objective To shorten the Patient Engagement In Research Scale (PEIRS) to its most
essential items and evaluate its measurement properties for assessing the degree of …

Development and pre-testing of the Patient Engagement In Research Scale (PEIRS) to assess the quality of engagement from a patient perspective

CB Hamilton, AM Hoens, S McQuitty, AM McKinnon… - PLoS …, 2018 - journals.plos.org
Objectives To develop and examine the content and face validity of the Patient Engagement
In Research Scale (PEIRS) for assessing the quality of patient engagement in research …

An empirically based conceptual framework for fostering meaningful patient engagement in research

CB Hamilton, AM Hoens, CL Backman… - Health …, 2018 - Wiley Online Library
Background Patient engagement in research (PEIR) is promoted to improve the relevance
and quality of health research, but has little conceptualization derived from empirical data …

Researcher-patient partnership generated actionable recommendations, using quantitative evaluation and deliberative dialogue, to improve meaningful engagement

E Wang, T Otamendi, LC Li, AM Hoens… - Journal of Clinical …, 2023 - Elsevier
Objectives To demonstrate how the 22-item Patient Engagement in Research Scale (PEIRS-
22) can be used to develop recommendations for improving the meaningfulness of patient …

Working together in health research: a mixed-methods patient engagement evaluation

S Babatunde, S Ahmed, MJ Santana, I Nielssen… - Research Involvement …, 2023 - Springer
Background In patient-oriented research (POR), patients contribute their valuable
knowledge and lived-experiences to work together as active research partners at all stages …

[HTML][HTML] Defining patient engagement in research: results of a systematic review and analysis: report of the ISPOR patient-centered special interest group

RL Harrington, ML Hanna, EM Oehrlein, R Camp… - Value in Health, 2020 - Elsevier
Objectives Lack of clarity on the definition of “patient engagement” has been highlighted as
a barrier to fully implementing patient engagement in research. This study identified themes …

[HTML][HTML] Measuring the impact of patient-engaged research: how a methods workshop identified critical outcomes of research engagement

EC Dillon, L Tuzzio, S Madrid, H Olden… - Journal of Patient …, 2017 - ncbi.nlm.nih.gov
Purpose While strategies to evaluate the influence of engaging patient partners in research,
such as the Patient-Centered Outcomes Research Institute (PCORI) WE-ENACT surveys …

Conceptual and practical foundations of patient engagement in research at the patient-centered outcomes research institute

L Frank, L Forsythe, L Ellis, S Schrandt… - Quality of Life …, 2015 - Springer
Purpose To provide an overview of PCORI's approach to engagement in research. Methods
The Patient-Centered Outcomes Research Institute (PCORI) was established in 2010 to fund …

Patient stakeholder engagement in research: a narrative review to describe foundational principles and best practice activities

JD Harrison, AD Auerbach, W Anderson… - Health …, 2019 - Wiley Online Library
Background Health research is evolving to include patient stakeholders (patients, families
and caregivers) as active members of research teams. Frameworks describing the …

Patients' engagement in primary care research: a case study in a Canadian context

DK Bhati, M Fitzgerald, C Kendall… - Research Involvement and …, 2020 - Springer
Plain English summary Patient engagement in primary care research is an increasingly
common requirement, as it helps make research more relevant to patients and therefore …