Privacy and confidentiality in the age of genetic engineering

G Poste - Tex. Rev. L. & Pol., 1999 - HeinOnline
As Judge Bork stated, this is a remarkable time in the life sciences in terms of the speed of
advances in genetic technologies and in terms of their analytical power. 1 They are matched …

[PDF][PDF] Genetic privacy: from the laboratory to the legislature.

LB Andrews - Genome Research, 1995 - academia.edu
Over the past few years, I have often been approached by researchers who tell me that they
wonder if they are doing the right thing by looking for this or that disease gene. They are …

Genetic privacy: orthodoxy or oxymoron?

A Sommerville, V English - Journal of Medical Ethics, 1999 - jme.bmj.com
In this paper we question whether the concept of" genetic privacy" is a contradiction in terms.
And, if so, whether the implications of such a conclusion, inevitably impact on how society …

Genetics and privacy

DH Ginsburg - Tex. Rev. L. & Pol., 1999 - HeinOnline
We have witnessed in this decade a veritable explosion in both our understanding of
genetics and our exposure to genetic information.! From Dolly the cloned sheep 2 to DNA …

The most personal information of all: an appraisal of genetic privacy in the shadow of the human genome project

GT Laurie - International Journal of Law, Policy and the Family, 1996 - academic.oup.com
The advent of genetics and genetic testing has given rise to unique problems for the family.
The discovery of a predisposition to a genetic condition in one individual also reveals …

Genetic privacy and non-discrimination.

R Casabona - Revista de Derecho y Genoma Humano= Law and …, 2011 - europepmc.org
The UN Inter-Agency Committee on Bioethics met for its tenth meeting at the UNESCO
headquarters in Paris on 4-5th March 2011. Member organisations such as the WHO and …

Privacy, Confidentiality, and genetic information: a comparative analysis

BM KNOPPERS - Microbial & Comparative Genomics, 1997 - liebertpub.com
Developing an understanding of the social importance of privacy is critical not just in gaining
philosophical clarity about privacy but also because our emphasis on privacy as an …

Genomics, inconvenient truths and accountability

J Lunshof, R Chadwick - The Right to Know and the Right Not to …, 2014 - books.google.com
Recently, genetics and genomics have become consumer products, moving beyond the
research lab and outside the clinic into the daily life of modern citizens. Direct-to-consumer …

Genetic testing, genetic screening and privacy

J Sandor - The ethics of genetic screening, 1999 - Springer
For moral philosophers and lawyers one of the most embarrassing characteristics of
genetics is that it touches intergenerational problems. It follows from the intergenerational …

Autonomy and a right not to know

J Husted, M Chadwick - The right to know and the right not to …, 2014 - books.google.com
Genetics and diseases of genetic origin inescapably involve families. Thus genetic
information obtained by testing one person may contain information of the same kind on one …