Supportive care: palliative care in children, adolescents, and young adults—model of care, interventions, and cost of care: a retrospective review

JB Belasco, P Danz, A Drill, W Schmid… - Journal of Palliative …, 2000 - journals.sagepub.com
In the United States, the majority of children with severe and/or progressive chronic diseases
receive most of their care at tertiary-care centres or specialized children's hospitals. The cost …

Comparing health care provider-perceived barriers to pediatric palliative care fifteen years ago and today

JF Bogetz, MC Root, L Purser… - Journal of palliative …, 2019 - liebertpub.com
Objective: This study examines health care provider perspectives about barriers to pediatric
palliative care for seriously ill children 15 years after an initial study within the same …

Paediatric death and dying: exploring coping strategies of health professionals and perceptions of support provision

E Forster, A Hafiz - International journal of palliative nursing, 2015 - magonlinelibrary.com
Without question a child's death is a devastating event for parents and families. Health
professionals working with the dying child and family draw upon their expertise and …

[PDF][PDF] Caring for dying children: assessing the needs of the pediatric palliative care nurse

D Morgan - Pediatric nursing, 2009 - Citeseer
Sumner (2006) used a chil-dren's book to poignantly describe the life cycle of nature: There
are lots of living things in our world. Each one has its special lifetime. All around us …

Pediatric palliative care nursing

TF Akard, VL Hendricks-Ferguson… - Annals of palliative …, 2019 - apm.amegroups.org
Palliative care is patient-and family-centered care that enhances quality of life throughout
the illness trajectory and can ease the symptoms, discomfort, and stress for children living …

Challenges to participation in paediatric palliative care research: a review of the literature

D Tomlinson, U Bartels, E Hendershot… - Palliative …, 2007 - journals.sagepub.com
It has been identified that there is a need for increased palliative care research within the
paediatric setting. The assessment of parental views is necessary for this population …

Being a bereaved parent: Early bereavement experiences and perspectives on paediatric palliative care and bereavement services

M Stevenson - 2015 - papyrus.bib.umontreal.ca
The death of a child is considered one of the most stressful and difficult experiences a
person can face. Clinicians, hospitals, and other organizations want to help and support …

Top ten tips palliative care clinicians should know about caring for children

M Jordan, PM Keefer, YLA Lee, K Meade… - Journal of palliative …, 2018 - liebertpub.com
Given the limited number of pediatric-specific palliative care programs, palliative care
providers of all disciplines may be called on to care for infants, children, and adolescents …

Experiences of healthcare, including palliative care, of children with life-limiting and life-threatening conditions and their families: a longitudinal qualitative …

S Mitchell, AM Slowther, J Coad, J Dale - Archives of disease in …, 2021 - adc.bmj.com
Objectives To understand the experiences and perceptions of healthcare services of
children with life-limiting and life-threatening conditions and their family members, including …

“There's just no way to help, and they did.” Parents name compassionate care as a new domain of quality in pediatric home-based hospice and palliative care

R Thienprayoon, D Grossoehme… - Journal of palliative …, 2020 - liebertpub.com
Background: To design high-quality home-based hospice and palliative care (HBHPC)
systems, it is imperative to understand the perspectives of parents whose children enroll in …