Supportive care: palliative care in children, adolescents, and young adults—model of care, interventions, and cost of care: a retrospective review
JB Belasco, P Danz, A Drill, W Schmid… - Journal of Palliative …, 2000 - journals.sagepub.com
In the United States, the majority of children with severe and/or progressive chronic diseases
receive most of their care at tertiary-care centres or specialized children's hospitals. The cost …
receive most of their care at tertiary-care centres or specialized children's hospitals. The cost …
Comparing health care provider-perceived barriers to pediatric palliative care fifteen years ago and today
Objective: This study examines health care provider perspectives about barriers to pediatric
palliative care for seriously ill children 15 years after an initial study within the same …
palliative care for seriously ill children 15 years after an initial study within the same …
Paediatric death and dying: exploring coping strategies of health professionals and perceptions of support provision
Without question a child's death is a devastating event for parents and families. Health
professionals working with the dying child and family draw upon their expertise and …
professionals working with the dying child and family draw upon their expertise and …
[PDF][PDF] Caring for dying children: assessing the needs of the pediatric palliative care nurse
D Morgan - Pediatric nursing, 2009 - Citeseer
Sumner (2006) used a chil-dren's book to poignantly describe the life cycle of nature: There
are lots of living things in our world. Each one has its special lifetime. All around us …
are lots of living things in our world. Each one has its special lifetime. All around us …
Pediatric palliative care nursing
TF Akard, VL Hendricks-Ferguson… - Annals of palliative …, 2019 - apm.amegroups.org
Palliative care is patient-and family-centered care that enhances quality of life throughout
the illness trajectory and can ease the symptoms, discomfort, and stress for children living …
the illness trajectory and can ease the symptoms, discomfort, and stress for children living …
Challenges to participation in paediatric palliative care research: a review of the literature
D Tomlinson, U Bartels, E Hendershot… - Palliative …, 2007 - journals.sagepub.com
It has been identified that there is a need for increased palliative care research within the
paediatric setting. The assessment of parental views is necessary for this population …
paediatric setting. The assessment of parental views is necessary for this population …
Being a bereaved parent: Early bereavement experiences and perspectives on paediatric palliative care and bereavement services
M Stevenson - 2015 - papyrus.bib.umontreal.ca
The death of a child is considered one of the most stressful and difficult experiences a
person can face. Clinicians, hospitals, and other organizations want to help and support …
person can face. Clinicians, hospitals, and other organizations want to help and support …
Top ten tips palliative care clinicians should know about caring for children
M Jordan, PM Keefer, YLA Lee, K Meade… - Journal of palliative …, 2018 - liebertpub.com
Given the limited number of pediatric-specific palliative care programs, palliative care
providers of all disciplines may be called on to care for infants, children, and adolescents …
providers of all disciplines may be called on to care for infants, children, and adolescents …
Experiences of healthcare, including palliative care, of children with life-limiting and life-threatening conditions and their families: a longitudinal qualitative …
Objectives To understand the experiences and perceptions of healthcare services of
children with life-limiting and life-threatening conditions and their family members, including …
children with life-limiting and life-threatening conditions and their family members, including …
“There's just no way to help, and they did.” Parents name compassionate care as a new domain of quality in pediatric home-based hospice and palliative care
R Thienprayoon, D Grossoehme… - Journal of palliative …, 2020 - liebertpub.com
Background: To design high-quality home-based hospice and palliative care (HBHPC)
systems, it is imperative to understand the perspectives of parents whose children enroll in …
systems, it is imperative to understand the perspectives of parents whose children enroll in …