With its diverse cultural and linguistic profile, South Africa provides a unique context to
explore contextual influences on the process of genetic counseling. Prior research suggests …

Abstract The article by Ricki Lewis, Nature, Volume 449, October 18, 2007, correctly points
out that the genetic counseling profession is on the" verge of being discovered by the rest of …

This paper engages critically with constructions of biological citizenship through analysis of
the experiences of 10 New Zealand families with rare and currently incurable genetic …

The availability of family-centred services for women genetically at-risk for breast and
ovarian cancer (BRCA) due to deleterious genetic mutations is still scarce, despite the …

Abstract In the United Kingdom, genetic counsellors work together with clinical geneticists
and clinical scientist colleagues within specialist genetics services, but they also often work …

The valuable contribution made by nurses and social workers employed in genetic services
in Britain was recognised by a Clinical Genetics Society Working Party. A recent survey has …

Genetic counsellors are an internationally recognised group of highly skilled healthcare
professionals with training and expertise in genomic medicine and counselling skills [1, 2] …

Abstract Irish Health Service objectives state that patients with rare diseases should have
timely access to genomic diagnostics with appropriate pre and post-test counselling …

Many families experience difficulty in talking about an inherited genetic condition that affects
one or more of them. There have now been a number of studies identifying the issues in …

Purpose: Disease advocacy organizations may assist in the conduct of research in a variety
of ways. We sought to characterize how disease advocacy organizations participate in …