Involving service users in the development of the S upport at H ome: I nterventions to E nhance L ife in D ementia C arer S upporter P rogramme for family carers of …

KJ Burnell, A Selwood, T Sullivan… - Health …, 2015 - Wiley Online Library
Background Involving service users in research can be an effective way of improving the
practicalities and acceptability of interventions for target end users. Objectives The current …

The impact of volunteering on the volunteer: findings from a peer support programme for family carers of people with dementia

G Charlesworth, JB Sinclair, A Brooks… - Health & social care …, 2017 - Wiley Online Library
With an ageing population, there are increasing numbers of experienced family carers (FCs)
who could provide peer support to newer carers in a similar care situation. The aims of this …

DEEP: the engagement, involvement and empowerment of people with dementia in collective influencing

R Litherland, T Williamson - Working with Older People, 2013 - emerald.com
Purpose–The purpose of this paper is to discuss the mapping processes and lessons
learned in a project to scope the user involvement activity of groups of people with dementia …

Dementia peer support: service delivery for the people, by the people

C Femiola, M Tilki - Working with Older People, 2017 - emerald.com
Purpose The purpose of this paper is to describe a community-based peer support project in
the London borough of Brent, led by people living with dementia for people living with …

Drawn from life: cocreating narrative and graphic vignettes of lived experience with people affected by dementia

A Capstick, A Dennison, J Oyebode, L Healy… - Health …, 2021 - Wiley Online Library
Background The growing literature on Patient and Public Involvement and Engagement
(PPIE) and dementia identifies specific problems related to the influence that involvement …

An explanatory model of peer education within a complex medicines information exchange setting

LA Klein, JE Ritchie, S Nathan, S Wutzke - Social Science & Medicine, 2014 - Elsevier
Studies of the effectiveness and value of peer education abound, yet there is little theoretical
understanding of what lay educators actually do to help their peers. Although different …

Culture, consent, costs and care homes: enabling older people with dementia to participate in research

C Goodman, NL Baron, I Machen… - Aging & mental …, 2011 - Taylor & Francis
Objectives: To describe factors that support and inhibit recruitment and participation of
people with dementia living in care homes. Method: This article focuses on the methods …

'I found it the only place that spoke the same language': a thematic analysis of messages posted to an online peer support discussion forum for people living with …

CV Talbot, NS Coulson - Age and Ageing, 2023 - academic.oup.com
Background Despite the proliferation of online support communities, little is known about
how people with dementia engage with them. Aim The aim of this study was to explore the …

Integrating education, research, and practice in gerontological social work: lessons learned from the reclaiming joy peer support program

RK Chapin, A Sellon… - Gerontology & Geriatrics …, 2015 - Taylor & Francis
The practice-to-research gap has been attributed to many factors, including differing goals
and priorities, differing knowledge bases and skill sets, and lack of recognition of limits of …

Involving patients and families in a social robot study

L Hung, A Berndt, C Wallsworth, N Horne… - Patient Experience …, 2019 - pxjournal.org
Innovative research in care practice for older people can benefit from the active involvement
of patient and family partners. Involvement may begin with identifying priorities, then move to …