The question of 'who owns genetic information 'is increasingly a focus of ethical inquiry.
Applied to predictive testing, several recent critiques suggest that persons with a genetic …

Using data obtained during a retrospective interview study of 30 women who had
undergone genetic testing—BRCA1/2 mutation searching—this paper describes how …

In genetic medicine, a patient's diagnosis can mean their family members are also at risk,
raising a question about how consent and confidentiality should function in clinical genetics …

Since genetic information has implications for family members, some choices about genetic
risk may be influenced by perceptions of responsibility to relatives. Drawing upon 25 semi …

Communicating genetic information to family members has been the subject of an extensive
debate recently in bioethics and law. In this context, the extent of the relatives' right to know …

What factors influence intrafamilial communication of hereditary breast and ovarian cancer
(HBOC) genetic risk information? Such information can have health implications for …

BACKGROUND: The familial implications of genetic information can lead to a conflict
between a physician's duties to maintain patient confidentiality and to inform at-risk relatives …

'Genetic responsibility'has emerged as a key notion for understanding how genetic risk
reshapes patterns of choice, identification and obligation within families. Where previous …

Genetic testing for hereditary breast-ovarian cancer has become an important part of clinical
genetics practice. Although considerable work has focused on the psychological impact of …

Design: Qualitative interview study. Participants: Fifty-nine patients with a family history of
cancer who attend a regional cancer genetics clinic in the UK were interviewed about their …