[HTML][HTML] How to support parents and healthcare professionals in the decision-making process of tube feeding in children?

L Remijn, CJC Kalsbeek, V Platteel… - Disability and health …, 2022 - Elsevier
Background Tube feeding in children has a severe psychosocial impact on children and
their families. Parents also feel that they have limited communication with healthcare …

Characterisation of information hospitals provide parents on tube feeding, including tube weaning

M Syrmis, N Frederiksen, C Reilly - Journal of Pediatric Nursing, 2019 - Elsevier
Purpose The purpose of this study was to characterise the content of hospital parent guides
related to pediatric tube feeding. Design and Methods A naturalistic search strategy was …

The psychosocial impact on parents of tube feeding their child

H Rollins - Paediatric Nursing, 2006 - search.proquest.com
A review of 13 papers investigating parents' experience of long-term tube feeding in
disabled children and young people identified a significant impact on parents and families …

Mothers' experiences and perceptions of their child's weaning process from tube feeding within a multidisciplinary Paediatric Feeding Program

J Cipolla, J Reeves-Latour, M Ramsay… - Paediatrics & Child …, 2022 - academic.oup.com
Objectives Previous studies have described the negative impact that tube feeding of children
with complex chronic diseases has on the caregivers' emotions, relationships and daily life …

Parents' experiences of their child's transition from tube to oral feeding during an intensive intervention programme

EJ Lively, S McAllister… - Child: Care, Health and …, 2023 - Wiley Online Library
Background Persistent enteral tube feeding beyond the point of medical and/or physical
necessity provides important nutrition to a child but may have implications for their …

Family experiences with feeding tubes in neurologic impairment: a systematic review

KE Nelson, A Lacombe-Duncan, E Cohen… - …, 2015 - publications.aap.org
BACKGROUND AND OBJECTIVE: Gastrostomy tubes (G-tubes) are frequently used to
provide enteral nutrition for children who have neurologic impairment. Understanding the …

Prevalence and side effects of pediatric home tube feeding

H Krom, SMC van Zundert, MAGM Otten… - Clinical Nutrition, 2019 - Elsevier
Background & aims Tube feeding ensures growth, but can have negative effects on health
and psychosocial functioning, resulting in health related costs. The aims of this study were to …

[HTML][HTML] Psychosocial aspects of feeding children with neurodisability

GM Craig - European Journal of Clinical Nutrition, 2013 - nature.com
The psychosocial support needs of parents considering a gastrostomy feeding tube for their
disabled child are often overlooked, yet there is a growing body of evidence that attests to …

The parental experience and perceptions of blenderized tube feeding for children with medical complexity

J Soscia, S Adams, E Cohen, C Moore… - Paediatrics & Child …, 2021 - academic.oup.com
Objectives Parents of children with medical complexity are often expected to implement
complicated plans of care, such as enteral tube feeding, to support the health of their child …

Paediatric tube‐feeding: an agenda for care improvement and research

N Hopwood, K Moraby, A Dadich… - … of paediatrics and …, 2021 - Wiley Online Library
This article presents an agenda to improve the care and wellbeing of children with paediatric
feeding disorder who require tube feeding (PFD‐T). PFD‐T requires urgent attention in …