Congenital heart defects (CHDs) are present at birth and require ongoing management of
personal, family, and medical aspects of care, including communication between family and …

Background An interdisciplinary framework including a narrative element could allow
addressing lack of awareness or excessive anxieties and teasing out divergences between …

This review will provide a concise description of mental health problems in parents of
children with a (non-syndromic) congenital heart disease (CHD) during different stressful …

Background Understanding children's views about living with congenital heart defects
(CHDs) is fundamental to supporting their successful participation in daily life, school and …

Congenital heart disease (CHD) effects one in every 8,000 births in the UK and across
Europe (Franklin et al 2015). It can be linked to genetic or chromosomal abnormalities and …

The Congenital Heart Disease Standards for England indicate that parents and children
should have access to a 24-h telephone advice service, however, little is known about …

The incidence of congenital heart disease (CHD) is eight per 1000 live births in the United
Kingdom and relates to malformation or disease present at birth, including congenital …

Purpose To explore parental needs related to their experiences of living with a child with
congenital heart defect (CHD) since the diagnosis. Design and methods An interpretative …

Children with congenital heart disease (CHD) can face neurodevelopmental, psychological,
and behavioural difficulties beginning in infancy and continuing through adulthood. Despite …

Category/Date Research Poster presented at NAPNAP's 42 nd National Conference on
Pediatric Health Care, March 24 th, 2021. https://napnap21. org/community/#/home …