Parent mental health and family functioning following diagnosis of CHD: A research agenda and recommendations from the Cardiac Neurodevelopmental Outcome …

E Sood, AJ Lisanti, SE Woolf-King, J Wray… - Cardiology in the …, 2021 - cambridge.org
Diagnosis of CHD substantially affects parent mental health and family functioning, thereby
influencing child neurodevelopmental and psychosocial outcomes. Recognition of the need …

[HTML][HTML] “I Just Want You to Hear That Term”: Characterizing Language Used in Fetal Cardiology Consultations

K Schweiberger, KW Harris… - Journal of …, 2023 - mdpi.com
The way clinicians communicate with parents during pregnancy about congenital heart
disease (CHD) can significantly influence parental understanding of and psychological …

Efficacy of congenital heart disease transition clinics in improving patient education

P Ricci, M Bouchard, C Chong Zhiya… - European Heart …, 2022 - academic.oup.com
Background Less than one third of adolescents with congenital heart disease (CHD)
successfully complete a structured transition to adult care. Patient education is at the centre …

Cognitive, language, and psychosocial outcomes in children with complex congenital heart disease: A longitudinal cohort study from infancy to early school years

MK Saini - 2023 - discovery.ucl.ac.uk
Congenital heart disease (CHD) and its surgical treatment can expose neonates to episodes
of hypoxia-ischaemia. Brain structures that have high oxygen requirements are susceptible …

Pediatric patients with congenital heart disease

RM Hueckel - The Journal for Nurse Practitioners, 2019 - Elsevier
Congenital heart disease is a lifelong disease that results from a heart defect or structural
anomaly. Signs and symptoms of heart disease vary by age and developmental stage of the …

[HTML][HTML] Parents' experiences of caring for their child at the time of discharge after cardiac surgery and during the postdischarge period: Qualitative study using an …

J Wray, K Brown, J Tregay, S Crowe, R Knowles… - Journal of medical …, 2018 - jmir.org
Background Congenital heart disease (CHD) is the most common class of birth defects,
which encompasses a broad spectrum of severity ranging from relatively minor to extremely …

Improving maternal–infant bonding after prenatal diagnosis of CHD

PCA Barker, GH Tatum, MJ Campbell… - Cardiology in the …, 2018 - cambridge.org
BackgroundInfants with prenatally diagnosed CHD are at high risk for adverse outcomes
owing to multiple physiologic and psychosocial factors. Lack of immediate physical postnatal …

What are the responses & needs of mothers of infants diagnosed with congenital heart disease?

M Upham, B Medoff-Cooper - MCN: The American Journal of …, 2005 - journals.lww.com
The American Heart Association (AHA) reports that an estimated 40,000 infants are born
with a congenital heart defect each year, and that eight infants out of every 1,000 births will …

Uncertainty of prenatally diagnosed congenital heart disease: a qualitative study

KW Harris, KM Brelsford… - JAMA network …, 2020 - jamanetwork.com
Importance Parents who receive a prenatal diagnosis of congenital heart disease may
experience more short-and long-term stress than those who receive a postnatal diagnosis …

Improving communication with families of patients undergoing pediatric cardiac surgery

C Lopez, CC Hanson, D Yorke, JK Johnson… - Progress in Pediatric …, 2017 - Elsevier
Peri-operative communication between families and parents of children undergoing
pediatric cardiac surgery remains uneven and is felt to contribute to variation in subjective …