Human Genome Diversity: ethics and practice in Australia
PS van Holst - Human Evolution, 2004 - Springer
Researchers who propose projects about the human past frequently fail to distinguish
between scientific value and the impact of both the proposal and the possible outcome for …
between scientific value and the impact of both the proposal and the possible outcome for …
Indigenous health research: governance by Indigenous organisations vital
C Swannell - The Medical Journal of Australia, 2022 - mja.com.au
INDIGENOUS health research in Australia is “largely informed by non-Indigenous world
views, led by non-Indigenous people and undertaken in non-Indigenous organisations”, a …
views, led by non-Indigenous people and undertaken in non-Indigenous organisations”, a …
Engaging rural communities in genetic research: challenges and opportunities
Statistical analyses of health and disease in rural communities is frequently limited by low
sample counts. Still, some studies indicate increased risk for some diseases even after …
sample counts. Still, some studies indicate increased risk for some diseases even after …
Guideline for feedback of individual genetic research findings for genomics research in Africa
A Matimba, S Ali, K Littler, E Madden, P Marshall… - BMJ Global …, 2022 - gh.bmj.com
As human genomics research in Africa continues to generate large amounts of data, ethical
issues arise regarding how actionable genetic information is shared with research …
issues arise regarding how actionable genetic information is shared with research …
Genomic medicine must reduce, not compound, health inequities: the case for hauora-enhancing genomic resources for New Zealand
SP Robertson, JH Hindmarsh, S Berry… - The New Zealand …, 2018 - search.proquest.com
Precision medicine seeks to draw on data from both individuals and populations across
disparate domains to influence and support diagnosis, management and prevention in …
disparate domains to influence and support diagnosis, management and prevention in …
The ethics and challenges of studying the genetics of marginalized populations
Marginalized Populations,” offers a pointed examination of the ethical considerations
embedded within the study of genetics in historically underrepresented groups. Although …
embedded within the study of genetics in historically underrepresented groups. Although …
H3Africa Biorepository Program: Supporting genomics research on African populations by sharing high-quality biospecimens
The establishment of Human Heredity and Health in Africa (H3Africa. www. h3africa. org)
has catalyzed collaborative research across national boundaries, building on existing …
has catalyzed collaborative research across national boundaries, building on existing …
[PDF][PDF] What is race in Australia
Australia has been more successful than most countries at banishing the term 'race'from
public discourse. Instead, we use the terms 'ethnicity'and 'indigeneity'. It is an interesting …
public discourse. Instead, we use the terms 'ethnicity'and 'indigeneity'. It is an interesting …
Chapter 10—Developing Indigenous Research Policy: Some Key Considerations for Future Work
DM Cook - 2014 - ajph.aphapublications.org
INTRODUCTION Health status and the health disparities experienced by Indigenous
people, including Canada's Indigenous population (Aboriginal peoples), are widely …
people, including Canada's Indigenous population (Aboriginal peoples), are widely …
Ethical, legal and social issues of genetic studies with African immigrants as research subjects
G Gong, S Kosoko-Lasaki, G Haynatzki, C Cook… - Journal of the National …, 2008 - Elsevier
There is growing interest in exploring gene–environment interactions in the etiology of
diseases in immigrants from sub-Saharan Africa. Our experience working with the Sudanese …
diseases in immigrants from sub-Saharan Africa. Our experience working with the Sudanese …