Human Genome Diversity: ethics and practice in Australia

PS van Holst - Human Evolution, 2004 - Springer
Researchers who propose projects about the human past frequently fail to distinguish
between scientific value and the impact of both the proposal and the possible outcome for …

Indigenous health research: governance by Indigenous organisations vital

C Swannell - The Medical Journal of Australia, 2022 - mja.com.au
INDIGENOUS health research in Australia is “largely informed by non-Indigenous world
views, led by non-Indigenous people and undertaken in non-Indigenous organisations”, a …

Engaging rural communities in genetic research: challenges and opportunities

C Dean, AJ Fogleman, WE Zahnd, AE Lipka… - Journal of community …, 2017 - Springer
Statistical analyses of health and disease in rural communities is frequently limited by low
sample counts. Still, some studies indicate increased risk for some diseases even after …

Guideline for feedback of individual genetic research findings for genomics research in Africa

A Matimba, S Ali, K Littler, E Madden, P Marshall… - BMJ Global …, 2022 - gh.bmj.com
As human genomics research in Africa continues to generate large amounts of data, ethical
issues arise regarding how actionable genetic information is shared with research …

Genomic medicine must reduce, not compound, health inequities: the case for hauora-enhancing genomic resources for New Zealand

SP Robertson, JH Hindmarsh, S Berry… - The New Zealand …, 2018 - search.proquest.com
Precision medicine seeks to draw on data from both individuals and populations across
disparate domains to influence and support diagnosis, management and prevention in …

The ethics and challenges of studying the genetics of marginalized populations

T Lasisi, KG Claw, K Fox, AA Zaidi - Frontiers in Genetics, 2023 - frontiersin.org
Marginalized Populations,” offers a pointed examination of the ethical considerations
embedded within the study of genetics in historically underrepresented groups. Although …

H3Africa Biorepository Program: Supporting genomics research on African populations by sharing high-quality biospecimens

A Abimiku, ES Mayne, M Joloba… - Biopreservation and …, 2017 - liebertpub.com
The establishment of Human Heredity and Health in Africa (H3Africa. www. h3africa. org)
has catalyzed collaborative research across national boundaries, building on existing …

[PDF][PDF] What is race in Australia

E Kowal, E Watt - Journal of Anthropological Sciences, 2018 - academia.edu
Australia has been more successful than most countries at banishing the term 'race'from
public discourse. Instead, we use the terms 'ethnicity'and 'indigeneity'. It is an interesting …

Chapter 10—Developing Indigenous Research Policy: Some Key Considerations for Future Work

DM Cook - 2014 - ajph.aphapublications.org
INTRODUCTION Health status and the health disparities experienced by Indigenous
people, including Canada's Indigenous population (Aboriginal peoples), are widely …

Ethical, legal and social issues of genetic studies with African immigrants as research subjects

G Gong, S Kosoko-Lasaki, G Haynatzki, C Cook… - Journal of the National …, 2008 - Elsevier
There is growing interest in exploring gene–environment interactions in the etiology of
diseases in immigrants from sub-Saharan Africa. Our experience working with the Sudanese …