Objective. Children with chronic illnesses and disabilities are increasingly enrolling in
managed care arrangements. Yet, the rapid expansion of managed care has unknown …

On the basis of the parenting stress model we compared levels of parenting stress in
families with and without a child with a chronic physical condition and analysed correlates of …

Background Self-reported health data from children with life-limiting conditions is rarely
collected. To improve acceptability and feasibility of child and family-centred outcome …

This paper reports the development and validation of a disease-specific measure of health
status and well-being of children with severe cerebral palsy (CP). The Caregiver Priorities …

Advances in medical care and technology have increased the lifespan and decreased the
disease-related suffering of children with chronic illnesses. In addition to physical health …

Quantitative studies of children's caring activities during parental illness have increased in
the past 10 years. However, the various outcomes for these children have been investigated …

Background The aim of this study was to explore and clarify the healthcare service utilization
of children dependent on medical technology (CMT), and the parental health‐related quality …

Objectives.(1) To describe the epidemiological and medical features of a sample with LLA
and LLD in childhood and (2) to explore their relationship with subsequent physical and …

Background Outcomes of health and rehabilitation services for children and youth with
disabilities increasingly include assessments of health-related quality of life (HRQoL). The …

To assess time costs of caring for children with severe disabilities in the community
compared to caring for children without disabilities, a diary-and questionnaire-based study …