Online information search by people with Multiple Sclerosis: a systematic review
D Berhanu, ML Rato, AI Canhoto, JV da Cunha… - sussex.figshare.com
BackgroundPeople with Multiple Sclerosis (pwMS) search for information online about
various aspects of living with their disease, but details about patterns of searching and …
various aspects of living with their disease, but details about patterns of searching and …
[PDF][PDF] Media responses to new medical treatments: A study of multiple sclerosis and the liberation procedure
CE Campbell - 2012 - repository.library.carleton.ca
This study probes media coverage of new and unproven medical therapies by examining
Canadian newspaper and television reporting on a novel hypothesis and experimental …
Canadian newspaper and television reporting on a novel hypothesis and experimental …
Toward digital self-monitoring of multiple sclerosis: investigating first experiences, needs, and wishes of people with MS
K Wendrich, P van Oirschot… - … journal of MS care, 2019 - meridian.allenpress.com
CME/CNE Information Activity Available Online: To access the article, post-test, and
evaluation online, go to http://www. cmscscholar. org. Target Audience: The target audience …
evaluation online, go to http://www. cmscscholar. org. Target Audience: The target audience …
Introduction: Do we need multi-stakeholder colloquia in MS?
P Vermersch, L Smets, R Gold - Multiple Sclerosis Journal, 2016 - journals.sagepub.com
Background: In the increasingly complex environment of MS there is a need for better cross-
talk and communication between the different stakeholders who each address MS according …
talk and communication between the different stakeholders who each address MS according …
Online illness narratives about living with motor neurone disease: a quantitative analysis
MR O'Brien, D Clark - British Journal of Neuroscience …, 2006 - magonlinelibrary.com
Background: To date, no published work has sought to investigate internet-based writing
about life with motor neurone disease (amyotrophic lateral sclerosis) or to determine who is …
about life with motor neurone disease (amyotrophic lateral sclerosis) or to determine who is …
Communication problems in multiple sclerosis: 9-year follow-up
PA Bringfelt, L Hartelius… - International Journal of …, 2006 - meridian.allenpress.com
The speech of 18 individuals with a long history of multiple sclerosis (MS), assessed 9–10
years earlier, was reinvestigated. The individuals were also interviewed about their …
years earlier, was reinvestigated. The individuals were also interviewed about their …
[引用][C] 292 Medical Informatics in a United and Healthy Europe K.-P. Adlassnig et al.(Eds.) IOS Press, 2009© 2009 European Federation for Medical Informatics. All …
L FERNANDEZ-LUQUEª¹, N ELAHI… - Medical Informatics in a …, 2009 - IOS Press
Treating multiple sclerosis with information
C Heesen - Multiple Sclerosis Journal, 2010 - journals.sagepub.com
In this issue Solari et al. 1 report on the first prospective systematic approach to monitoring
the disclosure of the diagnosis of multiple sclerosis (MS) and, additionally, the effects of an …
the disclosure of the diagnosis of multiple sclerosis (MS) and, additionally, the effects of an …
Social support in an internet forum for patients with Systemic Lupus Erythematosus (LES)
E Cicognani, D Mazzoni - Engaging people in Health Promotion & …, 2012 - cris.unibo.it
Internet forums represent a useful but understudied resource to understand psychosocial
aspects of living with SLE. This study was aimed to describe the demand/supply of social …
aspects of living with SLE. This study was aimed to describe the demand/supply of social …