Biobank governance: trends and perspectives
H Gottweis, K Zatloukal - Pathobiology, 2007 - karger.com
Biobanks are a challenge and topic for governance. Today, biobanks are identified as a
biomedical scientific/infrastructural development that warrants a political/legal/ethical …
biomedical scientific/infrastructural development that warrants a political/legal/ethical …
Biobank governance: heterogeneous modes of ordering and democratization
H Gottweis, G Lauss - Journal of community genetics, 2012 - Springer
The great interest in biobanks, the related, substantial investments, and the expectations
connected with them raises the question of how to explain the relative successes and …
connected with them raises the question of how to explain the relative successes and …
Biobank governance in the post-genomic age
H Gottweis, G Lauss - Personalized Medicine, 2010 - Taylor & Francis
Biobank governance is about the regulation of the relationship between individual citizens,
society and biobanks. Its key agenda is to link society, citizens and biobanks with respect to …
society and biobanks. Its key agenda is to link society, citizens and biobanks with respect to …
From consent to institutions: designing adaptive governance for genomic biobanks
KC O'Doherty, MM Burgess, K Edwards… - Social science & …, 2011 - Elsevier
Biobanks are increasingly hailed as powerful tools to advance health research. The social
and ethical challenges associated with the implementation and operation of biobanks are …
and ethical challenges associated with the implementation and operation of biobanks are …
Biobank governance: a lesson in trust
AK Hawkins, K O'Doherty - New Genetics and Society, 2010 - Taylor & Francis
Biobanks are controversial due to their ethical, legal, and social implications. Recent
discussion has highlighted a central role for governance in helping to address these …
discussion has highlighted a central role for governance in helping to address these …
[HTML][HTML] Has the biobank bubble burst? Withstanding the challenges for sustainable biobanking in the digital era
Biobanks have been heralded as essential tools for translating biomedical research into
practice, driving precision medicine to improve pathways for global healthcare treatment and …
practice, driving precision medicine to improve pathways for global healthcare treatment and …
[HTML][HTML] Constructing populations in biobanking
This article poses the question of whether biobanking practices and standards are giving
rise to the construction of populations from which various biobanking initiatives increasingly …
rise to the construction of populations from which various biobanking initiatives increasingly …
Reflexive governance in biobanking: on the value of policy led approaches and the need to recognise the limits of law
G Laurie - Human genetics, 2011 - Springer
Although a few jurisdictions around the world have legislated in response to the
phenomenon of biobanking, the far more common response has been policy led with …
phenomenon of biobanking, the far more common response has been policy led with …
[图书][B] Principles and practice in biobank governance
M Stranger - 2016 - books.google.com
Rapid technological advances, the establishment of large-scale biobanks, and the
exchange of data across international boundaries raise a variety of questions for regulators …
exchange of data across international boundaries raise a variety of questions for regulators …
The human face of biobank networks for translational research
K Meir, EF Gaffney, D Simeon-Dubach… - Biopreservation and …, 2011 - liebertpub.com
The biobanking literature frequently addresses donor and societal issues surrounding
biobanking, but the biobanker's perspective is rarely highlighted. While not comprehensive …
biobanking, but the biobanker's perspective is rarely highlighted. While not comprehensive …