New opportunities for large-scale data linkage and data-mining have rendered biobanks
one of the core resources of medical research in the twenty-first century. At the same time …

We begin with the premise that human tissue biobanking is associated with ethical
ambiguities and regulatory uncertainty, and that public engagement is at least one important …

Although scientific and commercial excitement about genomic biobanks has subsided since
the biotech bust in 2000, they continue to fascinate life scientists, bioethicists, and politicians …

Taking Biobank UK as its centrepiece, this paper analyses the politics of legitimation
accompanying the emergence of population-based genetic databases and the contribution …

The rapid development of biobanks internationally reflects the considerable expectations
attached to the exploitation of genetics knowledge. However, establishing consent and …

United States-based biorepositories are on the cusp of substantial change in regulatory
oversight at the same time that they are increasingly including samples and data from large …

Public participation is increasingly an aspect of policy development in many areas, and the
governance of biomedical research is no exception. There are good reasons for this …

The ethics of biobanking is one of the most controversial issues in current bioethics and
public health debates. For some, biobanks offer the possibility of unprecedented advances …

Prospective, population‐based biobanks designed for research into genetic, environmental
and lifestyle factors associated with common, complex diseases or the genetic basis of drug …

Biobanks supporting clinical and research communi-ties are rapidly becoming the norm as
essential organizational resources. Growth and centralization of biobanking services within …