The German national registry for primary immunodeficiencies (PID)
B Gathmann, S Goldacker, M Klima… - Clinical & …, 2013 - academic.oup.com
In 2009, a federally funded clinical and research consortium (PID–NET, http://www. pid-net.
org) established the first national registry for primary immunodeficiencies (PID) in Germany …
org) established the first national registry for primary immunodeficiencies (PID) in Germany …
[HTML][HTML] The German national registry of primary immunodeficiencies (2012–2017)
Introduction: The German PID-NET registry was founded in 2009, serving as the first national
registry of patients with primary immunodeficiencies (PID) in Germany. It is part of the …
registry of patients with primary immunodeficiencies (PID) in Germany. It is part of the …
The Swiss National Registry for Primary Immunodeficiencies: report on the first 6 years' activity from 2008 to 2014
K Marschall, M Hoernes… - Clinical & …, 2015 - academic.oup.com
Summary The Swiss National Registry for Primary Immunodeficiency Disorders (PID) was
established in 2008, constituting a nationwide network of paediatric and adult departments …
established in 2008, constituting a nationwide network of paediatric and adult departments …
[HTML][HTML] The European society for immunodeficiencies (ESID) registry 2014
B Grimbacher - Clinical and experimental immunology, 2014 - ncbi.nlm.nih.gov
The current European Society for Immunodeficiencies (ESID) registry was established 10
years ago in 2004, when the system was moved from a paper-based to an online system …
years ago in 2004, when the system was moved from a paper-based to an online system …
The European internet‐based patient and research database for primary immunodeficiencies: results 2006–2008
B Gathmann, B Grimbacher, J Beauté… - Clinical & …, 2009 - Wiley Online Library
Primary immunodeficiencies (PID) are rare diseases; therefore transnational studies are
essential to maximize the scientific outcome and to improve diagnosis and therapy. In order …
essential to maximize the scientific outcome and to improve diagnosis and therapy. In order …
The European internet-based patient and research database for primary immunodeficiencies: results 2004–06
… Registry Working Party Eades-Perner AM … - Clinical & …, 2007 - academic.oup.com
Because primary immunodeficiencies (PID) are rare diseases, transnational studies are
essential to maximize the scientific outcome and lead to improved diagnosis and therapy …
essential to maximize the scientific outcome and lead to improved diagnosis and therapy …
The creation and progress of the J Project in Eastern and Central Europe
L Maródi, J Project Study Group - … of the New York Academy of …, 2011 - Wiley Online Library
Primary immunodeficiencies (PIDs) have now become recognized as a worldwide health
problem. Rapid development of immunological and genetic technologies has led to the …
problem. Rapid development of immunological and genetic technologies has led to the …
The European internet-based patient and research database for primary immunodeficiencies: update 2011
… @ uniklinik-freiburg. de Binder N Ehl S … - Clinical & …, 2012 - academic.oup.com
In order to build a common data pool and estimate the disease burden of primary
immunodeficiencies (PID) in Europe, the European Society for Immunodeficiencies (ESID) …
immunodeficiencies (PID) in Europe, the European Society for Immunodeficiencies (ESID) …
[HTML][HTML] Primary immunodeficiencies in Russia: Data from the national registry
AA Mukhina, NB Kuzmenko, YA Rodina… - Frontiers in …, 2020 - frontiersin.org
Introduction: Primary immunodeficiencies (PID) are a group of rare genetic disorders with a
multitude of clinical symptoms. Characterization of epidemiological and clinical data via …
multitude of clinical symptoms. Characterization of epidemiological and clinical data via …
Primary immunodeficiencies in the Netherlands: national patient data demonstrate the increased risk of malignancy
BM Jonkman-Berk, JM Van den Berg, IJM Ten Berge… - Clinical …, 2015 - Elsevier
Purpose To analyze the data of the national registry of all Dutch primary immune deficiency
(PID) patients, according to the European Society for Immunodeficiencies (ESID) definitions …
(PID) patients, according to the European Society for Immunodeficiencies (ESID) definitions …