Objectives The insights that people with cystic fibrosis have concerning their health are
important given that aspects of health-related quality of life (HRQoL) are independent …

Context. Poverty has been shown to be a determinant of health outcomes in many
epidemiologic studies. Objective. The goal of this study was to assess the association …

Context Guidelines for managing cystic fibrosis (CF) patients have been widely circulated,
but little is known about the variations in practice between sites and their association with …

Background Patient-reported outcomes are increasingly used in clinical trials to assess the
natural history of chronic diseases and the efficacy of new treatments. Understanding the …

Improved treatments for cystic fibrosis (CF)-related lung disease have resulted in increased
longevity, but also increased prevalence and severity of extrapulmonary manifestations of …

Over the past 20 years, there has been tremendous progress in the area of patient-reported
outcomes (PROs). A PRO instrument is defined as any measure of a patient's health status …

Background Evidence is conflicting regarding differential health outcomes in racial and
ethnic minorities with cystic fibrosis (CF), a rare genetic disease affecting approximately …

Exploring the reasons for inequalities in outcomes in people with cystic fibrosis (CF) offers a
unique opportunity to develop our understanding around pathways in inequalities in health …

BACKGROUND: Because of better health care, most people with cystic fibrosis (CF) now
survive into adulthood, raising issues related to quality of life. Few studies have focused on …

Rationale: A 10-year gap in the median age of survival for patients with cystic fibrosis (CF)
was reported between patients living in Canada compared with patients living in the United …