[图书][B] Genetic testing: accounts of autonomy, responsibility and blame

M Arribas-Ayllon, S Sarangi, A Clarke - 2013 - taylorfrancis.com
Advances in molecular genetics have led to the increasing availability of genetic testing for a
variety of inherited disorders. While this new knowledge presents many obvious health …

[PDF][PDF] Genetic testing and screening

N Press - From birth to death and bench to clinic: The Hastings …, 2008 - bioethics.org.gr
Before the late 1960s, patients and their families were most likely to experience the world of
genetics in the context of rare, single-gene disorders and in the specialty clinic of a medical …

[图书][B] Ethical dilemmas in genetics and genetic counseling: principles through case scenarios

JL Berliner - 2014 - books.google.com
Knowledge of the genetic basis of human diseases is growing rapidly, with important
implications for pre-conceptional, prenatal, and predictive testing. While new genetic testing …

Genetic testing for hereditary disease: attending to relational responsibility

MM Burgess… - The Journal of Clinical …, 2001 - journals.uchicago.edu
Proponents of genetic testing for hereditary disease have advanced this technology in the
hopes that it will offer persons from families at risk of hereditary disease new choices for …

Beyond consent: ethical and social issues in genetic testing

MM Burgess - Nature Reviews Genetics, 2001 - nature.com
Informed consent is a vital ethical doctrine in clinical medicine and, through genetic
counselling, is being applied to genetic testing. But genetic testing raises issues that …

Genetic testing and its implications: human genetics researchers grapple with ethical issues

I Rabino - Science, technology, & human values, 2003 - journals.sagepub.com
To better understand ethical issues involved in the field of human genetics and promote
debate within the scientific community, the author surveyed scientists who engage in human …

“Family matters”: a conceptual framework for genetic testing in children

A McConkie-Rosell, GA Spiridigliozzi - Journal of genetic counseling, 2004 - Springer
Genetic testing in minor children presents a complex ethical and social problem. Current
guidelines state that genetic testing of children is recommended only under circumstances …

[图书][B] The genetic testing of children

A Clarke - 2020 - books.google.com
This book, written by a leading geneticist, examines the ethical and social issues raised by
the genetic testing of children. The opinions of geneticists, ethicists and affected families are …

Genetics providers and the family covenant: connecting individuals with their families

DJ Doukas - Genetic Testing, 2003 - liebertpub.com
As genetic testing becomes more commonplace, medicine will likely face both family and
individual demands for access to, and control of, test result information. Past research has …

“It just becomes much more complicated”: Genetic counselors' views on genetics and prenatal testing

S Markens - New Genetics and Society, 2013 - Taylor & Francis
Many social scientists and commentators have expressed concerns about the acceleration
of genetic medicine and testing in the last few decades. While there is a growing body of …