[图书][B] Genetic counselling: practice and principles

A Clarke - 1994 - books.google.com
Contributions to this study are drawn both from health professionals engaged in genetic
counselling and from observers and critics with backgrounds in law, philosophy, biology …

The growing role of professional societies in educating clinicians in genomics

TA Manolio, MF Murray - Genetics in Medicine, 2014 - nature.com
COMMENTARY to be developed and hold promise for directing physicians to the
information they need precisely when they need it. 10 Credentialing requirements for …

[引用][C] Genetic testing and the family

JR Sorenson, JR Botkin - … Journal of Medical Genetics Part C …, 2003 - Wiley Online Library
A phrase that one frequently reads in the research literature on genetic testing, in
commentaries by providers of genetic services, and in discussions of the ethical and legal …

[HTML][HTML] Points to consider: ethical, legal, and psychosocial implications of genetic testing in children and adolescents

JR Botkin, JW Belmont, JS Berg, BE Berkman… - The American Journal of …, 2015 - cell.com
In 1995, the American Society of Human Genetics (ASHG) and American College of Medical
Genetics and Genomics (ACMG) jointly published a statement on genetic testing in children …

Rights and responsibilities in the new genetics era

A Kerr - Critical Social Policy, 2003 - journals.sagepub.com
This article critically explores the distribution of rights and responsibilities associated with
recent developments in genetic testing and DNA donation. The author identifies two key …

Caught in the middle again: professional ethical considerations in genetic testing for health risks

ET Juengst - Genetic Testing, 1997 - liebertpub.com
Genotyping tests for molecular mutations associated with clinical syndromes increasingly
allow clinicians to identify health risks before clinical problems occur, sometimes making …

Ethical questions concerning newborn genetic screening

M Esquerda, F Palau, D Lorenzo, FJ Cambra… - Clinical …, 2021 - Wiley Online Library
Newborn screening is a public health strategy used to identify certain diseases in the first
days of life and, therefore, facilitate early treatment before the onset of symptoms. The …

Pediatric issues in return of results and incidental findings: weighing autonomy and best interests

IA Holm - Genetic testing and molecular biomarkers, 2017 - liebertpub.com
Nowhere are the ethical issues in genomic research more complex than in pediatrics.
Balancing the sometime conflicting autonomy of the parent and the child, and the best …

Disclosing genetic research results: examples from practice

KE Ormond - The American Journal of Bioethics, 2006 - Taylor & Francis
Using examples from my own practice as a genetic counselor, I would like to provide a
context for how the points raised by Ravitsky and Wilfond (2006) and other peer …

Ethical and policy issues in genetic testing and screening of children

Committee on Bioethics… - …, 2013 - publications.aap.org
The genetic testing and genetic screening of children are commonplace. Decisions about
whether to offer genetic testing and screening should be driven by the best interest of the …