Introduction: Recent years have seen a significant increase in efforts to incorporate the
patient voice into health-related research, with the goals of addressing research questions …

Patient engagement in research includes a range of activities in which researchers involve
patients in ways other than as subjects of research. Research funders and researchers are …

Context: Patients and caregivers possess experiential knowledge of living with a health
condition and/or accessing the healthcare system. This value-added knowledge …

Background The overall aim of this program of research is to assess when/how patient
partners are compensated financially for their contributions to health research. The research …

BACKGROUND: Subject recruitment is essential for conducting clinical research; however,
there are very few studies evaluating research uptake by families in a paediatric setting …

Background: Recruitment efforts for child health research are often based on assumptions,
therefore improving knowledge about parents' perceptions and preferences could enhance …

Pediatric youth advisory groups were created to provide insight and guidance to the clinical
research community. Such efforts have become a priority and parallel the demand for patient …

Objective To assess children's and parents' attitudes regarding pediatric research that poses
minimal risk or a minor increase over minimal risk and does not offer the potential to benefit …

Patient (also referred to as User or Older Adult) engaged research is a unique approach to
research design, implementation, and dissemination. The practice of engaged research, in …

Fifteen years ago, DMM was founded on the idea that 'application of fundamental
discoveries from (model) organisms will accelerate our understanding, diagnosis and …