I conducted a review of the literature at the outset of the study to identify what was known to
date regarding the experience of parents who care for a child, or children, with a diagnosed …

There is growing recognition of the importance of engaging patients early in the design of
research studies. For studies involving patients with intellectual and cognitive disabilities …

Purpose Adolescents join clinical research after investigators obtain their positive
agreement or “assent.” Although intended to respect adolescents, little is known about the …

Engaging patients in research has come to be viewed as a vital component of high‐quality
research, and funders now regard engaging patients and other stakeholders as a core …

Knowing why parents and children want to participate in pediatric clinical research, teaches
us what they attach importance to, what information they base their decision on and which …

Background Little is known about patient engagement in the context of large teams or
networks. Quantitative data from a larger sample of CHILD-BRIGHT Network members …

ERIC - EJ268404 - Dissemination of Research to Parents., Exceptional Parent, 1982-Aug
NotesFAQContact Us ERIC - Institute of Education Sciences Collection Thesaurus …

Abstract Objective To shorten the Patient Engagement In Research Scale (PEIRS) to its most
essential items and evaluate its measurement properties for assessing the degree of …

Henry Ford Engagement in research has been shown to enhance the ability of individuals
and communities to address their own health needs and health disparity issues while …

Background: Despite growing interest in patient engagement in research, there are few
empirical investigations of the nature of engagement and its effects. This information is …