Using Social Media to build a Counter-Power Movement: Multiple Sclerosis and CCSVI, a Case Study
A Bocchino - 2022 - westminsterresearch.westminster.ac …
The research is focused on a patient-based social media movement which advocated for
clinical research into a discovery rejected by key elements of the medical establishment …
clinical research into a discovery rejected by key elements of the medical establishment …
[HTML][HTML] People power or pester power? Multiple sclerosis, YouTube, and the liberation procedure
Background Venoplasty—dubbed the liberation procedure—has been proposed with the
controversial theory of chronic cerebrospinal venous insufficiency (CCSVI), as a possible …
controversial theory of chronic cerebrospinal venous insufficiency (CCSVI), as a possible …
Navigating MS Through The World of Social Media: Steering Away From Dr. Google
C O'Meara - neurologyacademy.org
Navigating MS Through The World of Social Media:… | Neurology Academy Academies
Courses & Events Projects Resources News & Articles About us & Our Partners Log in All …
Courses & Events Projects Resources News & Articles About us & Our Partners Log in All …
Contesting Medical Miracles: A Collective Action Framing Analysis of CCSVI and Venous Angioplasty (“Liberation Therapy”) for People With Multiple Sclerosis in …
SM Driedger, E Dassah… - Science Communication, 2018 - journals.sagepub.com
This study examines how a medically contested procedure for people living with multiple
sclerosis was framed by the news media and challenged by user-generated Facebook …
sclerosis was framed by the news media and challenged by user-generated Facebook …
Perspectives from the patient and the healthcare professional in multiple sclerosis: social media and participatory medicine
D Kantor, JR Bright, J Burtchell - Neurology and therapy, 2018 - Springer
When faced with a diagnosis of multiple sclerosis (MS), patients often turn to the Internet and
social media to find support groups, read about the experiences of other people affected by …
social media to find support groups, read about the experiences of other people affected by …
CCSVI-A. A call to clinicans and scientists to vocalise in an Internet age
AR Gafson, G Giovannoni - Multiple Sclerosis and Related Disorders, 2014 - Elsevier
Abstract In 2008, Paulo Zamboni pioneered the 'liberation procedure'for treating multiple
sclerosis (MS), claiming that MS is caused by an abnormality of venous drainage which he …
sclerosis (MS), claiming that MS is caused by an abnormality of venous drainage which he …
[图书][B] The Canadian liberation therapy movement: Mapping the new terrain of patient activism
MJ Hande - 2012 - collectionscanada.gc.ca
This thesis describes a Canadian patient movement—largely comprising multiple sclerosis
patients—that has developed around Chronic Cerebrospinal Venous Insufficiency (CCSVI) …
patients—that has developed around Chronic Cerebrospinal Venous Insufficiency (CCSVI) …
[HTML][HTML] Health topics on Facebook groups: content analysis of posts in multiple sclerosis communities
S Della Rosa, F Sen - Interactive Journal of Medical Research, 2019 - i-jmr.org
Background: Social network sites (SNSs) are being increasingly used to exchange health
information between patients and practitioners, pharmaceutical companies, and research …
information between patients and practitioners, pharmaceutical companies, and research …
Practicing patienthood online: Social media, chronic illness, and lay expertise
C Sosnowy - Societies, 2014 - mdpi.com
The use of digital technologies and social media by people with serious illness to find,
share, and create health information is much celebrated but rarely critiqued. Proponents …
share, and create health information is much celebrated but rarely critiqued. Proponents …
[HTML][HTML] Methodology of an international study of people with multiple sclerosis recruited through web 2.0 platforms: demographics, lifestyle, and disease …
EJ Hadgkiss, GA Jelinek, TJ Weiland… - Neurology Research …, 2013 - hindawi.com
Background. Despite evidence of the potential importance of the role of health and lifestyle
behaviours in multiple sclerosis (MS) outcomes, there has not been a significant focus on …
behaviours in multiple sclerosis (MS) outcomes, there has not been a significant focus on …